Bowel cancer CARERS, FAMILY & FRIENDS chat

Morning Maggie Simon is feeling a little better how is LES doing Simon is not a talker but I was chatting to everyone and yes they are all kind. Hugo is staying by Simon's side having to sort his food out walk playing with him and he is always a pain in the evening before bed to get your attention it is all extra work. How are you coping with puppy are you still at biting stage I have stopped talking to people used to inform everyone of appointments results extra but got fed up of hearing stay positive thinking of you chin up and asking me out I don't want to go out they have no idea what's it like oh and i have to look after myself how many times do you hear that. Simon has a canula put in no Hickman line. I am soo waiting for longer warmer evenings will be able to cope with Hugo better rather than stuck indoors I am here for you as you say you have to go through the Cancer journey to understand it or just say to me god that's s**t for you hugs to you xxxx

It looks like Hugo and Rufus are alike.  Starts being a pain at night. Got his claws done thank goodness. Pleased Simon is doing a little better and Les is in a mission at the moment due to the steroid. I agree with everything you say.  I hate going to chemo with Les as it is a constant reminder that they are poorly.  Here for you too.

big hugs to everyone xx

That is good news for Les what does in remission mean for him is he Cancer free hope I have read that right we need good news you have both been through a long journey xx

No he was on a mission with getting a bike. Unfortunately he certainly is not in remission. It is back in his liver and he had the op for that in April but is back and now lungs and adrenal gland. I wish he was. The way they explained it was that it is on his blood and they keep attaching themselves to bits. I was more than devastated and now on palliative chemo. Sorry jkee not good news at all. Love to you and all xx

Maggie I am so sorry hope I didn't upset you for ready it wrong like you my head all over the place wouldn't it be a dream to hear those words. Les is like Simon it's in the blood travelling and lungs same journey IT must be like winning the lottery to hear the words in remission bless you I am sorry again for getting it wrong good for Les keep telling Simon he needs to stay healthy to fight it on good days walking the dog he loves it take care xx

Hello Ladies!

Been reading all your posts oh dear you really both are still on that terrible rollercoaster. I was about to congratulate you Maggie when I too thought Les was in remission but so sad it's not to be .Jkee can't believe you can't go private I would have thought doing something like that would have been no problem but there you go.   I'm ok just now. Two weeks today William will be a married man so that is taking up a lot of my focus just now. I met Jay's cousin a couple of weeks ago at our GP practice I was there with Margaret and his cousin uses the same one. She was saying it will be a bit of an emotional day for me and I know it will be but I just hope there is so much going on that that will carry me through. I had Myla last night for a sleepover as William and Nicole both had early starts with work today and she said to me `Granny I haven't seen you in a long time` she is getting so big. She told me her mummy and daddy are taking her to Disneyland to see the `princesses`. William said they wanted to take her a holiday before she starts school in August so they are going to Disneyland Paris for a couple of days. William and Nicole asked for gifts of money for their wedding and I think this was what it was for they have everything else for their house with living together for 7 years so thought this would be an idea to get them all a good holiday. Margaret is ok nothing else much said about her heart operation but no news is good news as they say. She does have to go and see the hospital pharmacist though next Tuesday (11th February). As William said to me if they thought it was anything urgent think they would have seen to her before now. Was at the GP practice myself last week getting my yearly check up bloods got taken, urine sample given, blood pressure and weight checked and seems I have gained weight although I have dropped two dress sizes. The nurse said because I am going to the gym and using weights I've obviously gained muscle. I asked William about that because he was right into weight training and diet and a proper fitness fanatic for a while and he said don't go by what the scales say it's how you feel and if it shows in other ways like your clothes getting looser etc. He only goes to they gym occasionally now because of his work shifts but still manages to maintain his weight. So I just need to wait to get my results of my blood and urine tests back now. As usual ladies I am sending you both hugs and strength. Take Care

Vickyxx

Evening Vicky nice to hear from you gosh it must be exciting to see your son get married but also very sad hope you all try and make it about the two of them and make it a happy day for them but gosh it will feel lonely i'm sure for you without Jay but I guess you want to keep it happy for them. Sounds like you are doing really well at the gym a good idea to keep your mind healthy as well .hugs to you xxxx

Don’t be sorry jkee like you my head all over the place.  Keeping fit is best for them and Les takes Rufus on a morning even when he feels lousy. When he has had steroids he goes on a mission and bought a bike off eBay for £14 honestly.  We went to pick it up this morning and because I don’t go out much I got really anxious and felt dreadful.  I have out Rufus on a night but gone  to bed as he is playing up and I have come to lay down. Today I feel worse than ever and it is Les who is suffering but because I am usually up before 5 I have Rufus being naughty and at night. Don’t get me wrong he is gorgeous but when really naughty he is tired. Daughter took him to her house and played but wanted to come back here so he is really.
 Tired. I dare not even dream as Les said The motorhome we have is a white elephant but I said you never know.  Jkee I feel just like you head in the shed and going into the garage next. He said he might get a fish tank and I actually said a definite no no.  Thank you for being there.  It seems an eternity this has taken over our lives. Big hugs to you xxx

Hi Vicky. I can see how you could read it wrong but head in the shed.  No news is good news for Margaret so fingers crossed. Williams wedding has come quick and it will be a beautiful day. Good idea taking Myla to Disney land, my two went and they loved it.  Try and see her as much as you can before she starts school as my youngest was a covid baby but do see them when they are well but unfortunately Annie aged 5 has a chest infection.  They are so precious and cheer Les up no end.  Thank you Vicky for all your support.  It is quite sad we can’t meet up as only us know what we are going through and I do feel without this forum I would have no one to chat to. Love to all xx

Maggie I still tell people it would be easier without Hugo he is Simon's dog and gives him a reason to get up like Les to walk him .Simon tells everyone he saved his life which is true but even when we go to hospital I have to arrange someone to sit in and just when your tired they are naughty but he is keeping Simon alive.I often think when Simon is gone hopefully not for a long time I just want to hide under the covers will I be able to deal with the dog terrible thinking those thoughts I know hopefully no for a long time xx