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Bowel cancer CARERS, FAMILY & FRIENDS chat

Steph - Macmillan
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Hi everyone

I'm Steph from the Community team Slight smile

Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer.  The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.

Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis: 

Family and friends forum

Carers only forum

Supporting someone with incurable cancer forum

You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?

We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk 

  • in reply to RNE

    That is good news Nancy. I am really pleased for you.  Just be positive for him.

    well just turned into the freeman when Les rang to say the mr Hammond said he could go home. That was at 12.00. We have just got home at 6.30 and he resting after the long journey.  Hopefully we can build him up ready for the next op. 

    jkee how did things go, I am almost too worried to ask you.  My thought have been with you all today. Maggie xx

  • in reply to Distraught

    So pleased Les is home. the recovery can really start now. Nancy x

  • in reply to RNE

    Evening all I am afraid really bad news if we leave the cancers Simon has a few months to live they are going to open him up and see what they can do but because it is in the small bowel and fatty tissue and soft tissue when they open him up maybe lots of Cancer that has spread bit complicated to explain but if it is full of Cancer they will just shut him up without them trying he will die . Everything is resting on the 17th May but as I said to him you have given him months yet we have to wait 3 weeks but they have to get a team going to make a mesh or something this is not happening hugs to you all

  • in reply to Jkee

    Jkee I am so shocked and saddened for you.  My heart bleeds for you both. It does take them a while to get a full team together, that I have just learnt. Please be positive.  This is a huge shock for you and a lot to take in. I hope you have support around you to help you.  Words are not enough but I will send you a huge virtual hug .  Jkee I want to press the reply button but can’t but I will.  I just feel numb for you xxx

  • in reply to Jkee

    I'm so sorry to hear this news, sending a big hug. Nancy x

  • in reply to Distraught

    Evening ladies, I thought I had posted lastnight but must have pressed the wrong button.

    So sorry to hear your news Jkee and the wait will be hell for you both. Pleased Les is home and you do t have to travel back and forwards and hope he is more comfortable at home to recover.

    Pauls cremation is 13th of May. Sally and I have been busy starting to clear things from his house and I can cry at the drop of a hat. It feels like he is in the hospital or hospice and I can’t get my head round it. I would get any of this done if it wasn’t for Sally and her husband. 

    I have been catching up on the posts and think it’s about time we had some good news for a change to cheer us all up - here’s hoping anyway. Got a message from post code lottery and thought oooh I have won something - two hand soaps arriving through the post. I was hoping someone was gonna knock on the door!! Fat chance!!

    Take care people

    Helen x

  • in reply to Jkee

    My heart is breaking for you, I am so very sorry that you have been given this news. I apologise if you have already discussed this, I am very forgetful lately but is there no treatment at all they can offer? I pray when they operate it is positive. Sending lots of love xxx

  • in reply to Torry

    Helen I dont know where you find your strength but you truly are one brave and inspirational lady. Xx

  • in reply to Torry

    You certainly are one brave lady as scarlet said. Just cry if you need to.  I am so pleased you have posted as we all wanted to know how you were and if you are looking after yourself. Les is home and gosh do I know it. I have had it in both ears, shouting and extremely grumpy with me. He has just taken loads of laxatives but messed while going to the loo.  He has had some oromorph and I hope that settles the pain from his fissure. He won’t out his thingy tight socks back on either. I must admit I feel useless and start shaking when he is angry with me and then I do everything wrong. Tomorrow is another day.  I am not sure if I should stay up with him or not as he hates fuss xxx

  • in reply to Distraught

    HI Maggie glad Les is home good luck for the next few days sure it will be hard work for you but wishing you well my son is here tonight sat talking memories from the happy times dad gave them as kids at the seaside the rest of my children are coming next few days they need to be here for dad gosh my heart is broken. Simon is such a kind caring soul far to young but we need to start to think hopefully go in remove everything and rebuild him but difficult love to you keep strong xx

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