Bowel cancer CARERS, FAMILY & FRIENDS chat

Hi cxo. All we can do is to keep them positive no matter what. I tell Les every day how well he is doing. He had 16 sessions of chemo and then stopped, scan and liver resection.  Now the wait to see about the other op.  I am trying to be as positive as I can for him but inside I am a mess.  I have never cried as if I do I won’t stop.   He has a fissure which is extremely painful and not healing at all due to where the tumour is. As I said before I am no good with words but everyone are in my thoughts and sending huge hugs to all xx

Thankyou for your replies ladies. 
Distraught your husband has done amazingly well to endure that much chemo. My dad is only on his second round so far and it doing well. 
Can i ask if you dont mind please. How long after scan did he get his liver operation? Thanks x

Not too long. They took a few scans and mri. Then the oncologist, colorectal surgeon and the liver surgeon discussed how the chemo was working. He had quite a lot on his liver and then on the last scan they decided they could operate. He had a consultant radiologist and surgeon at Newcastle who did the last scan and about 6 weeks later he had the op and  after a fit test to see if he could pass the anaesthesia which he did. I was so proud of him.  He has had dark moments but mostly positive thoughts.  It has taken over a year to get where he is.  Never give up hope. We have had fantastic treatment with all the emails going back and forth as they are all in different hospitals. Xx

Thankyou Distraught. 
Im so glad he was able to be operated on. 
It will all be worth it in the end! 
I am mostly positive, just the odd bad thoughts now and again. This forum has been a godsend so far, so much love and support . 
Early days yet but im hoping same can be done for my dad x

Every day is a bonus. I think we are all in the same boat, bad thought, life has changed dramatically and then good thoughts. The forum is a great way to vent your feelings and thoughts. My hubby still does not know I come on here as I find it a god send too.  He has also been in hospital with sepsis and this blinking fissure. If it was not for the fissure he would be doing alright. I just hate to see him in pain. He got through the operation great.  Now we have to get him strong enough for the next. I really hope the chemo works and reduces the tumours. My thoughts are with you.  

Jkee how is it going with you.  Any news yet.  I am thinking of you all as usual, to all xx

Nobody knows i come on here. I was in a really bad state googling, so this site has been amazing and ive stopped going on google now. 
Hope your husband can get his fissure sorted out and get his strength back for his second op. 
thankyou x

The fissure won’t heal but he will talk to his oncologist hopefully this Thursday. He has had hit on and off since last September.  We don’t google anything as it is all different and each patient is different.  I find it best not to google but it is up to the individual.  Just come on here and vent as we are all here for you and it is a great forum. Hugs cxo xx

Hi everyone sorry not been on Simon is suffering in pain and tired to think we still have 2 weeks to wait to see if these cancers have spread the soft tissue in tummy is growing which he can feel. What is scary they gave him a few months to live but we have to wait 3 weeks to see if they can do anything. We have had all 4 children visit some staying over been like a hotel but I have cried the whole time we are all in a daze. Simon has now at last said he is scared we just want him to live so much still to do age 56 is no age. I hope Les is doing well hope everyone is doing ok sending hugs xx

My heart breaks for you all, what a horrendous time this must be. Is there any way the appointment can be brought forward? As you say, three weeks is very long when they have told you your poor husband may only have months left. I don’t know how you are all coping. Xx

Jkee I really don’t know how you are coping. The scans do take ages as they all have to look at them and decide. Again words are not enough and there is none that will hel you.  Just know that we are all thinking of you and your family. As you know my daughter goes back early hours of the morning and I am dreading ibeing on my own again.  My heart goes out to you.  Just sat wondering what I could say and reading your post and the feeling is overwhelming. 

huge hugs to all xxx