Hi everyone
I'm Steph from the Community team
Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer. The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.
Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis:
Supporting someone with incurable cancer forum
You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?
We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk
Jkee you must be in a dreadful state. This disease affects everything, work, play, just everything. As I used to say money is the route of all evil and does not give you good health. You can do this Jkee you are strong just like Helen.
vicky you too have had a terrible time of it and also a strong person.
gosh I feel for you all xxxx
Well that was a nice wee afternoon for me to spend with the wee one. She is getting so big now and becoming a right wee girl and a `chatterbox` at that too. She's so pleased to see me now one of the nursery assistants shouted on her that her granny was here and she came running out shouting Granny!! makes your heart swell. So we went home and had our Macdonalds. and then I had to help her build things with her building blocks. Feel quite tired now but pleased at the same time that I was able to help them under the circumstances. Love and Hugs to you all.
Vicky x
Vicky that would have been lovely for you and the wee one. It is lovely spending one to one with her. I am pleased you had a nice afternoon and helping out. It makes a difference when you can help in any way.. you are such a great support to us and your family xxx
Another day of `granny duties` Had Myla most of today again. Nicole was going to the funeral parlour to see her mum today and it wasn't a nursery day for Myla. I'm exhausted think I'll be in bed for 9 tonight. Ended up taking her home at 4 today. William was able to get some time off from work to take Nicole to the funeral parlour and back but had to go back to work after it and did not have the time to collect Myla from here so phoned to say would I take her home. Bit `hairy` going through traffic today as between 4 & 5 is rush hour with everyone going home from work but managed it I was quite pleased with myself think Jay would have been proud. The wee soul fell asleep on the way home she'd been running her heart out most of the day. I stayed and had a chat with Nicole she's a lovely girl and I'll be quite pleased to have her as my daughter-in-law her voice is so soft though and sometimes you have listen to what she is saying to you. She's quite shy as well but in the almost 10 years I've known her she has come out her shell a lot. She reminds me of myself as I am a bit reserved and quiet myself. They just have tomorrow to get over now and then they can start to think of getting back to normal whatever `normal` will be. Take Care Everyone.
Vicky xx
Thanks for sharing, it's heartwarming to read about your granny duties, little kids are so adorable. I hope Nicole is coping ok, it's so sad to lose a parent.
To be honest, I'm not coping too well since the loss of my dad. I'm just working from home, eating, sleeping and crying. You don't sound like a reserved and quiet person at all, you sound so energetic. I wish I had some of your energy!
Helen, I know what you mean... I feel like my dad is at his house or in the hospital, feels unreal that he's gone forever. I'm so sorry you've been through so much, hope the counselling is helping.
To everyone else whose loved one is suffering, words are inadequate. You're in my thoughts x
Vicky the little ones are exhausting but they go back home at the end of the day. Well done to you for driving during ripush hour, not sure I could do it. I have great son in laws who will do anything for you but one lives in Australia as you know. Daughter goes back Monday and I will miss her so much. Just given Les his injection and oops it hurt him, I will get better at it. Les is slowly getting there which is pleasing but his site is still oozing a little but not much. Our friend and his wife a doctor and nurse said it looks okay. Tomorrow for Nicole will be horrendous and your son will also feel it so soon after jay. You are doing a great job and supporting all of us on here. Sending love and hugs. Maggie xx
Falling leaves. You will feel like that for a while. Just take your time and do what you need to do for yourself. Just make sure you look after yourself as well while coping with your grief xx
Thanks Maggie!
I'm back picking up the wee one today from nursery-keeps me busy! when I said to Nicole yesterday about picking her up today she wasn't so sure and thought they would be back in time but had William on the phone saying they won't so once more into the rush hour later today. Thinking about them today. Bringing it all back about Jay but i'll be fine. Fallingleaves I can assure you I'm good a putting on a `mask` for people but inside I'm a mess. My confidence is beginning to build again though. I could always `hide behind` Jay for a lot of things but he's not here now so I need to try to be my own person now and I've done not so bad it seems. Everyone tells me that I have done well since Jay passed even all you here. Jay wasn't that outgoing either for a lot of things so we were well matched but out of both of us he was the one that was more `forward`. Well the sun is out so the washing is on and I'll get it out hopefully. Maggie is that the injections you need to give them to stop blood clots? I had to do that with Jay first time he came out hospital after his operation her had to get these done for 21 days and I had to do that but I think eventually he managed to do it himself. Take Care Everyone.
Vicky xx
Vicky I am the same, very quiet and a bit withdrawn. Hide it well like you. I do feel for you today as it will bring the memories flooding back. Yes the injections for 28 days tinzapatin, he has it in his arms as in the tummy it hurts for a couple of weeks. Hopefully the one tonight will not be as bad but insists on where I should put it. Men. I have constant ectopics which is not good at all but no doubt we all will get through it. Thinking of you all today. Just enjoy the wee one. Xxx
Morning All,
Well I survived yesterday but today I just feel drained. I have had a lot going on this week and I think this is why. I feel exhausted but it's ` good exhausted` stayed with the wee one until 8.30 last night until William and Nicole came home. They were all at Nicole's dad's who she says is not too great which will be understandable lovely send off they gave her mum though they said. Hopefully they will be able to get back to some kind or normality. Maggie sounds the same as what I had to do with Jay had to inject into the stomach but obviously with Les having problems there they have made exceptions. Think they told me I could inject into his stomach or the top of his leg but guess it all works the same way. Sending you all lots of love and hope you have a lovely weekend. Take Care.
Vicky xx
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