Bowel cancer CARERS, FAMILY & FRIENDS chat

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Hi everyone

I'm Steph from the Community team Slight smile

Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer.  The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.

Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis: 

Family and friends forum

Carers only forum

Supporting someone with incurable cancer forum

You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?

We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk 

  • Hi Angie. I don’t think it is up to me but he has dad a terrible 5 days and has gone into a hospice this morning. Jkee has had no sleep for 5 days. I doubt she has time to come on and explain but will do once she has settled xx

  • O no that’s awful my heart goes out to her xx

  • I did tell Jkee that I had told you and she said it was okay. He is having a dreadful time of it and she had not slept. Trying together soon under control and the sickness. I really can’t imagine what she is going through and feeling. It is a dreadful situation at the moment but hoping they get Simon settled soon xxx

  • I really feel for her please give her my best , it’s such a wicked illness.x

  • Dear angie I will let jkee know that you are thinking of her when I hear from her this morning. I really hope they have the pain and sickness under control now.  I know she too is in a dreadful state.  I hope you and bill are okay. It is just before 6 in the morning and I am going to have a cup of tea.  Sending you hugs xxx

  • Thank you had my tea at  6 I always wake early too .

    we are ok thank you,  hope les is getting on better now and taking his anti sickness.

  • I am fed up of waking early but we have workmen here which is another added stress. I got up earlier to let Rufus out as the gates are open. He will be going for his walk later. Jkee is just sat holding his hand. I really don’t know how she has coped.  I am pleased you are okay. Les won’t take his anti sickness but now just feels yucky. He will take them if he is worse as otherwise the chemo tablets will not work and he knows that now. It is a devastating journey we have been and still are on. Sending you lots of hugs xxx

  • Poor Jkee really feel for her

    To be honest I am dreading getting to that stage,

    Bill is coping ok with the chemo at the moment the symptoms seem to last a bit longer now he gets less days feeling normal between treatments now , he had the pump taken of yesterday last steroid tablets today then things go down hill for about 4/5 days then 3/4 ok days and treatment again . X 

    how long will you have the added stress of workmen in ??? 

  • Les was the same on the other chemo. His hands and feet are terrible. I just can’t bear to see him poorly. Ditto on dreading it. But one never knows who will go first. I wish I was stronger but I am not. I have terrible days. I have not even cried yet. For some reason it just won’t come and I hate talking about it or yelling anyone. Jkee has been so strong these last few days and I am amazed and so proud of you all. The workmen probably about another 2 or 3 days. They have taken all the pebble dash off and now doing k rendering. Making cups of tea a lot. Xx

  • O that’s a big job your having done with everything else , I think you are stronger than you think you are already coping with a lot of, I am not a cryer either just think some people aren’t every one says it’s good for you I am not so sure .

    I am doing ok I am worse if I dwell on things but tend not to,   and I try and keep busy I find that helps , I am lucky as I have good health and I am still fairly fit think that helps me to cope .

    We really don’t know what’s round the corner one day to the next with this horrible illness.

    Thinking of you and of course Jkee xx