Bowel cancer CARERS, FAMILY & FRIENDS chat

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Hi everyone

I'm Steph from the Community team Slight smile

Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer.  The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.

Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis: 

Family and friends forum

Carers only forum

Supporting someone with incurable cancer forum

You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?

We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk 

  • Hi Angie. This chemo is tough on Les. He collects more tablets in the morning. Does he have a Hickman line. I will reply in the morning as just gone to bed xxx

  • He has a PICC line been in a year now and his been lucky with it , it gets uncomfortable and it’s awkward for him because he must not lift anything with that arm , not sure if it’s the same as a Hickman ? X 

    I suppose with Tablets they have to be ingested so and make you more sickly, bill did have tablets in the beginning 2 years ago at the same time as the radiotherapy and they did affect his appetite, but this chemo he eats ok on although he does still get nausea xx 

    its all so horrible isn’t it to watch them go through it x 

  • Unfortunately les has been up all night. My worst nightmare. He is not coping with this new chemo. This is a rollercoaster and I am so anxious. Does bill have a Hickman line. Les had his out as thHeartt chemo was not working. I hope and pray that bill is okay with the chemo. Sending love Heart️ xx

  • o no hope he improves as the day goes on poor les , Bill has a PICC line not sure if it’s the same as Hickman x 

  • I don’t think it is. He has to go to hospital to pick up the next 5 days of tablets. I really can’t believe this is happening as sometimes it feels real and then others when he is well it is fairly normal. I hate it when reality kicks in xx

  • Definitely feel the same it was nice having the break and tough go back to it but it has to be done to stop the thing spreading , he would be ok if he didn’t have treatment but for how long . X

  • Angie no one knows how long it will work for. Chemo unit just been on and said he needs to take the anti sickness tablets as they won’t work if he is poorly. I have a really bad phobia of that and panic. They are going to have a word with him when he gets up and my daughter will take him to the hospital to pick them up xx

  • I am glad your daughter can take him for you , gives you a little break and I hope les has had a better night .

    our children are very good too , I do almost all the driving now always to and from hospital.

    Hows your little dog now has he settled down a bit now ?? X

  • I hate driving and lost confidence in it. My other daughter lives in Australia but would come if I need her. Rufus is hard work as still a puppy and just wants his dad on a morning so it is hard work. Also getting work down outside so when workmen here he can’t go in the garden. A nightmare at the moment. How are you Angie xx

  • O my goodness you are having a tough time at the moment , and I am sure I couldn’t cope with a puppy to .

    I am lucky I am a confident driver and I like driving so I don’t have a problem with doing all the driving the hospital that he has the treatment in is about 35 / 40 minutes drive .

    Have you heard anything about how Simon is doing I do wonder and think of jkee xx