Bowel cancer CARERS, FAMILY & FRIENDS chat

Afternoon Maggie do you normally meet after a Mdt meeting or do you get a phone call. We have our lead colorectal nurse thinks she is Macmillan she always rings. Have you had the results from the surgery it could just be the result it is normally 2 weeks after. Could even be what is the next course as you know it is never over completely just a shame you have weekend no point saying don't worry of course you will be cricky xx Simon was meant to have brain scan today 1 hour to hospital got half way they rang to say machine was broke honestly nothing makes me cross just another delay another calamity. Sending you hugs xx

Hi Jkee. This the first time after the operation we will be seeing her. I am not really talking to him over the huge hedges as he won’t get anyone in. As you I did it sort of last year but this year another year older.  He said he will do it. I did get someone round for a price but he has refused to pay. If I have not enough to contend with.  Honestly I feel I am losing it. 

I can’t believe the machine broke half way to the hospital, it is a shame there was not one nearer you could go to. Another delay again for you.  I feel we are both getting angry over things but we have to grin and bear it. This is so hard, not wanting to upset them but at the same time what about our feelings. 

hugs to all xx

I feel for you so much, I get the brunt of my husband’s frustration too. It’s not fair at all. I hope the weekend passes quickly for you as I know you will be constantly on edge and you don’t deserve that. Big hugs to you xxx

I can’t believe the machine broke, that is so frustrating and stressful for you both. It takes a lot to prepare yourself mentally for these things do to have it cancelled is awful xx

We are getting used to appointments and things happening or not I am afraid it is the way we were cancelled the other week as well as it was only 4 weeks after his operation.Hope you are ok Scarlet10 sending love xx

Oh Bless You Maggie!  Hate when these things happen going into the weekend knowing nothing will get done to Monday and as you say it will be a long weekend. Easier said than done, but just try if possible to find some kind of distractions to take you over those two days. It will be hard but Monday will be here before you know it. I'm feeling really tired today and don't know why just hope I'm not in for a bug of some sort want to be ok for Margaret next week.  Childcare duties tomorrow again. Had a `day off` last week William doing overtime again. Thinking of you all as always and sending hugs. 

Vicky xx

Hi Vicky. I get like that when I am exhausted. Remember you are taking a lot on and already have done. Just enjoy the wee one. They grow up so fast. Take your advice and relax before Margaret’s appointment. Thank you from us all for your continued support and sending you a big xx

Bless You Maggie and Love & Strength to all you lovely ladies. Take Care xx

Thinking of you today Maggie you were in my prayers for good news xxxxx

Hi Jkee and everyone. Good news. Took 15 inches of bowel away. Called us in for a review as they had sent stuff away and lymph nodes were negative. Still has a really bad fissure and needs building up before he goes back on chemo. She did tell him that his bowels will be all over the place and it will be trial and error. She also said it was a complicated surgery and was shattered after as it took longer than expected.

I am thinking of you all and thank you for your good wishes.  Love and hugs to all xx