Bowel cancer CARERS, FAMILY & FRIENDS chat

Hi Maggie bless him think he would have been monitored every 15 mins last night so he wouldn't have had much sleep. Do you know how the operation went or what they found hopefully they were happy with how it went . Simon is ok I think still not able to go far just local went to daughter's to sit in garden in shade he was very silent so I knew something was going on he was in a little pain and wanted to come home to sit on his own toilet . Would have been nice to see the sea before our oncology appointment Thursday but he has no energy but we are ok considering what he has ben through like you say a lot on the body .HOPE YOUR VISIT IS GOOD XX

All I asked was he okay and they said it went as planned. I really could not handle anything else. I hope the visit is good. Today I feel queen y with tummy ache.  It is awful when they only want to use their own toilet as Les was the same.  Simon has been through so much and I am sending my love for Thursday. I don’t think the warm weather is helping as I can’t even cope with it never mind Simon as I feel drained.  Sending you a big hug virtually.  How much more can they endure.

sending hugs to all xx

Aw Bless You Maggie!

You'll be running on adrenaline so try and get some rest sometime today if you can. Hopefully the worst will be over. Yes I raised a `few glasses` to Jay last night and today just having a quiet day of reflection. Got a Wattsapp text from one of Jay's old workmates earlier had to ask who it was couldn't recognise the number. Was nice of him to message and remember Jay he thought a lot of him. Well as you say Maggie today is another day hope things are on the up for you now. Take Care. 

Vicky x

He was in agony tonight and they reattached his morphine drip then he wanted a poop but would not use the bed pan so the nurses took him to the loo and we left then.  I feel so sick and queezy I can’t blinking eat. What a lovely friend jay had ringing you xxx

Thank you all. I have taken a tablet to see if it calms me down.  I just want to cry but I don’t know why I can’t as I know holding it in is causing me more anxiety and stress. 

I hope everyone is bearing up xx

Bless you Maggie it is hard when they are in pain Simon found the night staff helped him with the pain control let's hope tomorrow he starts to feel better I would think tomorrow you will know more. Your adrenaline will be racing tonight nothing I can say apart from I cried buckets and it did release the tension sending hugs xx

Somehow jkee I find it really hard to cry and I do know it would do me good. I hope lime Simon they manage to get pain under control. I feel so tired but not tired. Ectopics in stomach are driving me crazy.  Tomorrow is another day Jkee. Hope all not too bad with you xx

Thank you, Maggie.

I’ve been ‘yo-yo’ing between home and Guisborough as my daughter had some end of school year stuff that I needed to support her with, and also to try to relieve some of the pressure on my wife (who is being amazing).

The first few days of my Dad being out of hospital were pretty traumatic. He just wanted to sleep and didn’t want to eat or drink anything. He finds the carer visits particularly draining and, understandably, the fact that he is bed-ridden and reliant on the carers is impacting his mood.

I had to go home on Thurs. My Mum stayed up pretty much all night on Fri night watching him and was quite worried so I travelled back up here yesterday. Dad seemed to pick up a little bit yesterday. He managed a little bit to eat and was awake for quite a lot of the day. He was awake for about 18 hours today and has had more to eat than yesterday, but it seems to mostly go straight through him.

He has to get out of the bed tomorrow so that OT can fit bed guards so will be the first time using the hoist at home to get him into a chair. I’m hoping that being out of bed boosts his mood a bit but I know that moving in the hoist is likely to take it out of him x x

Thinking of you and Les, Maggie. It’s understandable that your emotions will be all over the place with the vicious rollercoaster ride we all face. Be kind to yourself. Sending love and hugs x x

Matt this really traumatic for and the travelling.  Your mum will be exhausted.  I really can’t imagine what you are all going through.  I hope your dad is as comfortable as he can be.  Personally we are all on this rollercoaster but much worse for you having to travel constantly up and down as that is tiring in itself. Your emotions and your mums will be all over as well.  I hope you manage to get some restful hours during this tough time. I am thinking of you and sending hugs xxx