Bowel cancer CARERS, FAMILY & FRIENDS chat

Hi Maggie bless you how many times a day do we say how are you ? are you ok? are you in pain? are you sure your ok . At the moment it is what you doing don't lift that leave it I will do it lol just to relax would be nice but having said that let's me happy for small things seeing him in morning stll here today and hopefully no ambulance .hugs to you x

Gosh Jkee you are so right in what you say.  I am really happy for the small things.  I must admit I did chuckle as I honestly did not realise how many times a day we say those things instead of nagging them to finish this and can you do that. Hugs to you too xx

Hi Jkee!

Oh my! 5 stone that is quite low and if you are small you'll be like a skelf (splinter of wood). My mum was like that small and very slight build and she had 3 `hefers` like my sisters and me (one who is gone of course!). I have lost some weight too apparently but then I'm not eating as I call them `Jay size portions` at dinner now. Jay would cook for an army and it was only the two of us and had all the in-betweens as well crips, cakes snacks etc so that has all gone too. Now i just cook enough for myself or have a ready meal for one. A few people I haven't seen since last year said I look as though I have lost a bit of weight which I need to do. I've been keeping up my gym visits as well. I know though your weight loss is through no fault of your own. I wish you and Maggie all the best with what is to come with Simon and Les. Take Care. 

Vicky xx

Hi everyone. How are you all doing. 
been busy this last few days with hospital appointments, bloods and again on Friday to mark where they are going to operate. I am really uptight about it and so is Les. 

Jkee how is it going with you and Simon.

helen I hope you enjoyed your break.

vicky you are such a good support and how are you.

everyone else I am thinking of you all and sending huge hugs xxxx

Hi Maggie have been thinking about you a lot hope you are ok it has been ok here hardest bit is stopping simon doing things like lifting etc forever telling him which of course causing tension in the house. Today he has took dog out on his own even though I said no was upstairs and he just went . He has been doing daft things even left car window open in Morrison car park and his phone on dash board while he walked around the carpark I came back from the shop no Simon I was ringing him to find where he was imagine what I was feeling when he came back just lots of silly mistakes of course I am thinking after he said the other day had headache it's in brain. When will I ever relax decided it is me that has the problem need to relax a little bit more can't be on high alert 24 hours a day. We see the oncologist next Thursday so will enjoy our sunny days until we start our next drama will they or won't they offer it he has to have it so fingers crossed. You are nearly getting that horrid Cancer gone from his bowel I hope on with the fight everyone xxx

Hi Maggie & Jkee

I'm ok thanks! This of course is the week leading up to both Jay's anniversary of passing and would have been our wedding anniversary on Friday. Not really feeling anything at the minute. I have my ultrasound scan today so stressing a little bit about that stomach literally doing somersalts. Wouldn't usually bother me but with all my recent history of hospitals over the last couple of years it's all that more prominent. Just hoping there's no change like there have been in previous years. Next week I go with my sister to see her breast cancer specialist think it's to get her discharged from that clinic as she has had no problems there in the last 5 years but then with her bowel cancer last year just hoping again everything is ok. I have to go to the floor with her where Jay had to go for his clinic appointments. These things are sent to try us but just hopefully I'll get through everything. Take Care and good luck with what you are both still facing with Simon and Les. 

Vicky xx

Hi Vicky hope you are ok that year has gone really quick think we all took our lives for granted a few years ago and now it's hospital appointments for family as well for different things. You have been very strong this last year and being a support for everyone but you need to find for yourself. Good luck with your test and the very best to your sister xx

Hi everyone. Maggie, Jkee, Vicky - thinking of you all with procedures, consultations and tests coming up. We finally got my Dad home from hospital yesterday. He had shown a bit of improvement in the run up to coming home but think moving him from hospital bed to stretcher, ambulance journey and then transfer from stretcher to bed at home really took it out of him. He’s been asleep pretty much all day today and is refusing to eat or drink which is very unlike him. Also, when he is awake he is complaining about feeling sick and is bringing up bile and mucus. He hasn’t really had any nausea through all of this. I’m hoping that it’s just that he needs a couple of days to get through the ordeal of getting home but fear that he was building himself up for that and, now that he’s home, that he’s ready to let go. He just seems so weak and frail, and it’s heartbreaking to see him bedridden and able to do so little for himself. Thinking of and praying for you all, and sending lots of love x x

Hi MG!

Sounds a bit of an ordeal for your dad. What you are describing sounds a lot that Jay went through in the end. He just lay in bed and ate very little if anything and drank more and he was quite nauseous and sick but like your dad it was mainly bile he brought up and always had to have a basin handy. He had his share of being in and out of hospital and unfortunately he never got his wish to pass at home the final hospital admission finished him and he passed in hospital he was just too weak to come home and I was told that if they tried moving him the trauma of having to get him into an ambulance would mean that he may not have survived it and passed away on the way home which would have been a bit undignified. I was quite at peace though that he did pass in hospital as he had round the clock care there to give him what he needed in his final hours in regards to pain relief etc. I wish you well with what your dad is going through. Take Care. 

Vicky x

Thanks JKee

Went for my scan and of course I won't know anything until neurology have looked at the results. Went ok I think although they won't tell you if there is anything to worry about. They mentioned that there was some `fatty tissue` there at my last scan and apparently they were checking for this but couldn't see it on the screen whether that's a good or bad thing I don't know. I'll know soon enough though I suppose. Just next week with my sister to get over now and of course this weekend with Jay's anniversary. Take Care. 

Vicky x