Bowel cancer CARERS, FAMILY & FRIENDS chat

Hi everyone. 
falling leaves your dad has to have something to hang on to and best not to say anything. If he is happy that is all that matters., 

pauline I hope you get something for his blood pressure or at least get it sorted. 

Jkee I hope you are coping with puppy and hubby. 

vicky you are doing a marvellous job. 

well went to his mums to meet the estate agent. There is about third to half an acre of land and it is like a jungle. Strimmed some of the lawn but it kept cutting out. Used hedge trimmers to make a path which was already there but well over grown. Les got a bit frustrated as too tired and said , let’s just go, I think it is because his sister has literally done nothing but just waiting for the money. She is so self righteous, arrogant and a few other names I could say but won’t. Son in law taking Les up as daughter wants the wooden garden set as it is really nice. Gosh I hate gardening. I got bit as well not far from my little bum. Put stuff on when I got home just hoping it does not turn nasty. It is lovely seeing my friends of over 50 years. They are so calming.

torry you are doing marvellous the way you are coping as well.  

speak later. Take care and huge hugs to all. Maggie xx

Hi everyone hope you have had a good day. 

Maggie it appears you are having a nightmare with the house please take care of yourself and try not to overdo things, I know easier said than done but you need to look after yourself. 

Vicky he was hoping to hear from the gp today as his palliative nurse was going to speak to them. Nothing so far  You are really doing so well but take care of yourself  

fallingleaves88 Barry is on meds for high blood pressure which he maybe doesn’t need now  it is all so confusing  I just don’t know if this is due to poor appetite, age, his tumour or something else.  I wish someone could explain all this to me. 

Take care everyone

Hi Maggie hubby behave today Puppy little sod thought he was calm but a friend came to visit little sod was jumping and biting all the training went out window in the end opened the gate where all my plants and pots are let him dig them up just so we could chat and tonight Simon had him trying to jump and bite so did time out glass of brandy now needed but on a good note he is now asleep for the night x Sounds like you have a lot on we went through same few years ago families are not always close. Since Simon's Cancer not seen them couple of phone calls sad really . Hope everyone is ok love and hugs x

Evening everyone! Not been here for a few days, they have been rather chaotic. Mark had his pre-chemo bloods taken last Wednesday morning at the GP, just after dinner the hospital called us to take him straight down as there was a problem with his kidney function. The following morning they had done the double Nephrostomy. Think I may have said this previously but not sure. 
I’m writing here as I’m in full on anger mode! They have said that the CT scan 6 weeks ago showed a slight kidney blockage. Earlier I was looking on his MyCare App to see if they’d had the results from todays bloods (turns out the last 2 blood test results haven’t been added) But what was added was the blood results from the 7th, just over 3 weeks ago, and they show poor kidney function. I just don’t understand why they wouldn’t have acted on this sooner instead of leaving it to get so bad that he had to have the Nephrostomy. They knew poor functioning kidneys would prevent chemo from starting. GRRRRR I’m just so angry.

apologies everyone, rant over xx

Hi kleigh.  That is awful.  How is he after the op.  Is he home etc. I really feel for you and mark. That is so frustrating to say the least. I hope they can do something for him so he can start chemo.  I would personally start to ask questions. 

Keep us all updated and rant as much as you like we are all listening. 

take care everyone.  Hugs Maggie xx

That’s terrible for you both- how is Mark now! So does that mean he can start chemo now. It’s all the unknown. Feel free to vent your anger here as we all have those feelings and understand your frustration.

Helen x

Afternoon All!

So another `limbo` day well sort of. Almost got the funeral sorted just waiting on an actual date though. This'll hopefully happen today after the registrar has phoned me re the death certificates. His funeral plan just about covers everything so that's a wee weight off my mind anything else will probably be extra. William wanted a floral wreath with the Rangers Football Club emblem so that's what he's getting. He's getting dressed in his Rangers shirt and just a pair of joggers (may as well go comfy). The funeral director showed us order of service we could have with Rangers on it as well but we thought that may be a bit overboard so just going with a nice one where they can put the `Mason` tartan on it as I believe we do have one. I think I got just about everything she went through I was kind of zoning in and out and my stomach was in knots still trying to comprehend that we are actually having to do this. We can go and view him the day before the funeral so we've agreed to that and she hopes to have a date between the 11th-14th July. Peak holiday season for some in Glasgow but `hey ho` if they can't come, they can't come and I'm not asking people to put holidays they've probably saved for throughout the year on hold just for a funeral. I'm just hoping he gets a decent turnout though you get people who say `we'll be there` and end up not coming. I remember when it was Jay's mum hardly anyone came back for the wake after it. This is what worries me. 

xx

Hi Vicky I think the gap between loosing Jay and the funeral is a difficult time I bet it feels like your just arranging everything for someone else and it doesn't feel real it's Jay. Long as his love ones are there on the day that is all that matters love to you and your family xx

That's Exactly what it feels like Jkee. I just feel I'm walking around in a daze. Registrar got back to me this afternoon, so I'll get the death certificates and all that done. Then at 4.30 the funeral director rang and guess what? the registrar hasn't got back to her so now it will need to be Monday before a date for the funeral can be arranged. As registrars are working remotely you can't contact them because it comes up private number on the phone. She's hoping the registrar has contacted the head office and they'll get back to her so at present we are still in limbo with the date but hoping it will be she said today between the 11-14th July. Think someone is trying to keep him here for as long as possible before letting him go..

Just left me know if you want to start a new thread .

Court x