Bowel cancer CARERS, FAMILY & FRIENDS chat

He is in agony with his fissure and just had a go at me over his injection. I will just keep an eye on him xx

thank you everyone. Hugs to all xx

Bless you now the hard work begins for you as you may remember the first week was awful for me Simon was very demanding if not challenging and quite snappy not like him he is so laid back and very caring towards me but I remember not getting anything right. Give it until weekend for you both to settle in . Hope they sent him home with pain killers x

Thanks Jkee. He has already been snapping at me and nothing I do is right. I have already done 5000 steps and we live in a bungalow. He can snap at me for a few days and then I will tell him. His fissure hurts as well.  He has now taken paracetamol thank goodness and due next lot at 11. I don’t like the responsibility and get anxious.  Honestly how much more can we all take as this rollercoaster never stops. I hope you get good news on Thursday as I will be thinking of you.  Sending hugs and love xx

I wouldn’t be shy about calling that number and asking them to come and give him the once over at some point over the next couple of days. Even if he seems to be doing okay, it’s nice to have someone check the standard obs and give some reassurance, and eases some of the burden of responsibility on you. Take care of yourself and hope you both have a comfortable night x x

Thanks Matt. One of our best friends, husband and wife is a doctor and colorectal theatre nurse and they are coming tonight.  They went every day while in hospital.  She works closely with Nicola maguire the surgeon who operated on Les so that makes me feel better now.  I hope you and your family are coping. Xx

Hi Everyone!

Just back from hospital with my sister she had an appointment with her breast cancer specialist today. I thought she would be getting discharged this morning as they haven't needed to see her in a while but she got hit with that they have noticed lesions on her bones and think it may be secondaries either coming from her breast or bowel cancer they're not sure but want her back again for tests. The specialist didn't seem too concerned but wanted her to have blood tests today and they will send her for a CT scan at a later date and then go back to see the specialist in 8 weeks time. Trying not to make this all about me again but why do I now feel that I have a very bad feeling of `de ja vu` and what have I done wrong to deserve this and will I ever get a break from this. Hospital's are not letting me go anytime soon. Take Care Everyone.

Vicky xx

Vicky I am so, so sorry. That is unbelievably cruel news. You absolutely have done nothing to deserve this and neither has your poor sister. Sending you lots of love and hugs xxx

Vicky as Scarlett say you have done nothing wrong. You and Helen are being tested.  I honestly can’t believe this is happening to you again.  Please just come on and have a moan as you have been a great support to us all. Also don’t say it is about you as we are all here for you and your sister. I am sending you a big virtual hug .  You and Helen have and are going through so much in such a short space of time. Make sure you eat and rest xxx

Thanks ladies,

Margaret (my sister) seems well within herself. They took her height and weight today and her weight has gone up so that at least is a good sign. She doesn't seem too bothered but hard to tell with Margaret. The specialist told us not to worry- easier said than done and that she is just to continue with the drug they put her on to stop the cancer coming back. She was on Tamoxifen but think they stopped that for that reason which may have been causing the problems with her bones and they put her on a new one it's a long name can't pronounce it but begins with and `L' I'll find out. Don't know how I was able to drive back home after getting that news but did may have just went into `autopilot` may need to start taking some of my own advice I have been giving to the rest of you. Hope you all bearing up ok Maggie hope they can do something with pain relief for Les. Jkee hope things are ok with you and Simon. Take Care Everyone. 

Vicky xx

That’s such a shame having to deal with your sister - like you said what have we done to deserve all this trauma ect
On a brighter note I had a wonderful day yesterday as I was 70 ) don’t know how that happened) Spolt rotten all day and a small surprise party with close family and friends at a lovely pub in a pod!! Only wish if Paul and Kevin could have been there. Sally organised my whole day after I said I just wanted my birthday to go unnoticed but it was loveliest 

Helen x