Bowel cancer CARERS, FAMILY & FRIENDS chat

Of course not, Karen. All advice is hugely appreciated. That’s a good point. If I’m ever unwell and my wife tries to comfort me, I often find that I don’t really want to fussed. So there could be a bit of that and, as you say he may be saying that as he doesn’t want to upset my mum.

Yes, they have an Alexa. My dad is quite tech savvy. I’m not, so had no idea it could do that!

 Thank you! x

His concerns are understandable but gosh, I don’t know how he’s coping without painkillers. He sounds like an incredibly brave and strong man! I hope the pain starts to ease soon x x

You’re welcome. I had no idea either until my granddaughter rang me one day and I said ‘does mummy know you have her mobile’ and she said ‘no I’m ringing you from Alexa!’ x

Matt it is really hard for all the family it hurts to see the person you love suffer at the moment you will all be in this strange bubble that I feel no one can quite understand unless they have been on the Cancer rollercoaster journey. Just spend time sitting with him but do not forget to look after yourself sending prayers to your family xx

How is Les today Maggie ? 

Yes that's right it does. My son has an Alexa and he phoned me one day while I was babysitting at his house I could hear his voice and thought he was home and I was going about the house shouting `where are you`? and he says `I'm phoning you on the Alexa` and here was me thinking I was going senile and hearing voices

You are doing a great job Matt. 

well went to the hospital and just about to leave when a nurse came and said I have all his discharge meds and papers. Guess what he lying down on the sofa in the other room.  Now I will panic again watching his every move.  

big hugs to all xx

I’m sure you will, Maggie. When I’m at my parents’ house I listen out for the sound of my dad snoring at night (I don’t have to listen too hard ) and panic if the noise stops.

That’s amazing that he’s home so soon. Less chance of him picking up an infection at home and more chance of him getting some proper sleep, which I think is so important for the recovery.

I know that my mum has always felt a mix of emotions whenever my dad has come home from hospital, because she worries whether she’ll be able to give him the care he needs. Have you got the district nurses coming out to support you? x x

Nobody coming out just a number to ring.  That is worrying also as he only had his drain and catheter out today xx

Gosh think that is the record I panicked after 5 days but agreed with Matt safer at home from infection. They must be happy with him. Now he has no drains he will be more comfortable in his own bed. I know Simon improved at home don't worry it will be ok love to you xxx