Bowel cancer CARERS, FAMILY & FRIENDS chat

Evening sorry Les is at AEU hopefully will be back tonight you did the right thing staying at home.We have still not heard from Pet scan but doctor had result Simon Cancer has progressed and more in lymph nodes and lungs so Palliative is not working he is in a lot of pain but hospice has now got on top of that even they have had no lucky chasing oncologist so we don't know what's next does he turn up for his targeted chemo this Thursday if nothing has worked we are just managing the pain not eating much now and dog walk makes him out of breath. I am broken like you alone I did send you a friends request look at your e-mails I am a dinasour when it comes to tech sending love x

Les is on an IV drip. I have no words that will make you feel better. Jkee not sure where the emails are xx

 Distraught  Look at your normal day to day emails and you should have one from MacMillan asking if you want to accept a friend request from Jkee - the emails are often in quite small tying. Alternatively click on the far right icon on the green bar at the top of the page then profile. This will take you to your own profile page then click on friends and it will tell you how to see any pending friend requests and you can accept Jkee. 
Let me know if you’re struggling and I’ll try and help.

Sending all you ladies a big hug x

Thank you Karen. I think I have done it. Just in a bit of a state. Slept in clothes last night well tried to sleep. They are not sure if they are taking the Hickman line out. I will get ready and pop and see him even though he said not to bother. My bowels are playing up dreadfully. Like jkee I am a mess.

love to everyone in this dreadful position without support.  Big hugs xxx

Morning ladies, things seem to be dragging on for you with more appointments etc and no good results. My heart goes out to you as there is nothing I can say to help, it just goes on and on. No one understands how it affects partners unless you are going through it. 
I am muddling along in this new life, joined a ladies walking group and volunteering at community garden one afternoon a week. Going to Switzerland on Saturday with daughter in law and grandchildren for 3 nights to scatter Paul’s ashes on Monday on the glaciers as it will be one year on Monday - bitter sweet. Feeling very sad as on 27th it will be two years for Kevin.

Love Helen xx

Helen I can’t believe it has been that long. I have no words for you either as you are feeling the pain as much as us. I will add you as a friend as I think I know what I am doing. Sending you hugs xxxx

Hello Ladies!

Just caught up with your posts again. I am so sorry to hear what you (Jkee and Maggie) are going through. Like Helen said there is really nothing you can say that will make things better but just know you are both in my thoughts. Goodness Helen! is that two years almost since Kevin went?? Right enough it's coming up for two years for me since Jay passed in June they were just months apart from their passing. Not been great the last couple of weeks very down and despondent think it is the build up to `the anniversary` spoke to an online counsellor who said I may always associate this time of year with Jay going knowing each year this was around the time he was in his final months so to speak. Had wee Myla just about every weekend over the last couple of weeks though seems to have become a regular thing. William brings her on the Friday night and picks her up about lunchtime on the Saturday when he finishes work He has been getting regular overtime so is taking it and Nicole works a regular shift on a Saturday so makes sense to bring the wee one here on the Friday night as they are both out really early on the Saturday morning and means they would need to get her up and dressed to bring her here. My sister Margaret has been unfortunately `playing up` again. She has a fixation on one of the flats in her complex that the woman staying there is annoying her with playing loud music etc which is just not happening. The woman is out at work all day. The previous tenant of this flat was a man who passed away who Margaret said was doing the exact same thing to her with playing music etc. Its like her flat is at one side of the complex and she is at the other. She said this woman keeps her blinds open and watches her I went along last night because she was on the phone to me saying it was `happening again` so I went along and sat in the car for a few minutes and didn't hear a sound I told her this and she said it's once I go it starts again and `she` waits until I go away. The woman doesn't even know me and I don't know her. 

She told me the warden was retiring and I spoke her last night and mention it and she said `I'm not retiring`. Everything is going well for her she has more or less got the `all clear` on her cancer issues and is progressing well. It's just the waiting for her heart valve surgery now. So i've got back on to mental health to see what they can do. She needs to go and see the GP though and they may get her referred again. She says when she goes to the mirror in her house this woman doesn't like it when she turns a light on she doesn't like it so something is definitely amiss somewhere. She doesn't open up if anything is getting to her so I can't help her. She said to me last night `if you can't help me I'll need to go somewhere else`. I have done nothing but help her taking her to and from hospital getting shopping in for her and making sure her bills are all paid etc. I'm technically an unpaid carer for her. She's happy as long as she can get out and has food in her belly. She's really nothing to worry about apart from her heart surgery coming up. But I'll get to the bottom of it. Sorry for the rant I know you all have more important things going on.  Thinking of you all. Take Care. 

Vicky xx

Hi Vicky. You are having a right old time of it with Margaret. I think she does need to be seen and get her meds sorted. Les was at consultant earlier. Not good news. Two tumors are growing. Hickman line out and start a new regime on 6 may. Devastated as you can imagine. I have sent you a friend request and if you accept that would be great. Also just come on and rant until your heart is content xx

Maggie didn't get your friend request

I will try again xx