Bowel cancer CARERS, FAMILY & FRIENDS chat

Jkee it is probably all what you are going through with Simon and like me nothing you can do but another waiting game. I agree it is an horrendous position to be in but they are troopers.  Les was poorly all morning but still out in the garden. Please get checked and have your bloods done otherwise I would have never known about mine waiting for my scan and that will not be good. To be honest there is not much to say but we need to come on and get the support we need from others in the same situation.  Jkee big hugs to you and everyone else xxxx

Hi everyone. Jkee how are you coping. My tummy is twirling today and anxiety high. Was not too bad yesterday but hit me during the night as les came back in our bed with a bloody bowl. Not doing good today. I am wishing you have a better day than me. 

sending everyone love and strength xxxx

Evening sorry you are feeling the way I am feeling it's awful isn't it Simon's pain has increased so he takes his morphine and we have hospice keeping a eye on us just feel left by the oncology team even though I am ringing all the time chasing still not got pet scans results even though Simon says what's the point I am going to die and just repeats don't let me be in pain the love of my life is slowly disappearing in front of me it hurts. Shut myself away from everyone just break down all the time my heart goes out to you xx

Jkee we are here for you all the time to cry. Let off steam or whatever. Did you make a docs appointment as my b12 is not good due to not eating properly even just to get your bloods checked. I am thinking of you all the time as your suffering has a devastating. We find out on Wednesday. God love you and everyone in this situation. Hugs xxxx

Hello Ladies!

Just catching up with your posts. My heart goes out to you both. Jkee I just wish there was words of encouragement I could send to you but you and Maggie are constantly in my thoughts. Yes it's a horrible feeling just to sit and watch them decline in front of your eyes and I have been where you are Jkee and it's not nice so do have an idea what you are going through Jay was like that at the end as well it was `when I'm not here/when I go` and I just couldn't handle hearing it at times and at the end it was just as if he was willing it to happen. As Maggie says we're here anytime you want to come on and scream your head off at people who `get it`. Maggie you are going through this too so I am thinking of you and Les just as much. Oh dear! just wish I could speak to you both over the phone or physically give you both a hug. Please take care both of you. Sending loves and strength. Take Care

Vicky x

Thanks Vicky. I just wish we could speak over the phone as I have no support here at home. It can be such a lonely place to be most of the time well all of the time. My thoughts are with you as well and hope you are keeping okay in your own way.  Sending my love xxxxx

If you ladies ever did want to exchange phone numbers then you can add each other as friends and then swap numbers privately? x

Thank you Karen but I am not sure how to that as I am not technical lol xx

There’s a link below on how to do it. You click on the name in the post that you want to be friends with which takes you to their profile page. You then click on ‘connect’ on the right hand side, then ‘friend request’. They will then get an email asking if they want to accept you as a friend. 

https://community.macmillan.org.uk/a/help-pages/c/private-messages-and-friends

Well les in AEU think he has an infection in his Hickman line. It was very angry red. Bloods taken etc and waiting now. He said I had to stay at home as he would not be long. Gosh this is a journey and a half. See oncology on Thursday for results of the scan. My scan has not come back yet but should be there at the docs tomorrow. Could not stand any more bad news. 

jkee how are you coping. How is everyone else. I still don’t know how to add as a friend. It is a lonely place xxx