Bowel cancer CARERS, FAMILY & FRIENDS chat

Jkee it is a whirlwind. Both Les and I have blinking cold now. I have not been near him in hospital as the room is so big. He has to have the window open and likes the lights dull. Came home early as I was freezing in his room. I feel lousy and he does. Still high temp and they spoke to the microbiologist who said he in the strongest antibiotics but can’t get his temp down or blood pressure up. I am so worried and full of anxiety.  I just feel I am not coping at all.  

matt really pleased your dad has picked up and getting out. I hope it continues. 

just going to make some tea.

love and hugs to all xx

Honestly Maggie you really don't need that but I have to say hospitals are a petri dish I think with covid in them as well tricky to avoid you need a bath paracetamol and bed early hope Les has a cold only he is weak bless him I know when Simon was in I wore a mask and Simon said the nurse was coughing staff were dropping like flies.You both need a break must admit didn't sleep last night feel flu like today headache hoping just lack of sleep I am going to try and find the magic wand out of the draw that the grandchildren left it and wave it for everyone tonight praying you get some rest x

What a good idea.  A magic wand. I have managed something to eat, water and paracetamol at 8. Then bed.  God knows how Les must be feeling with this on top of his infection etc. you take care xx

Hi Maggie how are you feeling today ? How is Les xx

Hope you slept a bit Maggie, Have you visited today - how is Les doing?

helen x

Hi all.  Dreadful night. Full of cold. Mt temp was 39.7. Taking paracetamol.  Have not got out of bed. Not been to the hospital so I rang one of Les hoof friends who visited him and that seems to have perked him. Just rang and he is having tea. Feel guilty that I can’t go. He is ring me tonight. Just feel like crying, alone here in bed feeling crap.  Sorry for being miserable xx

• You stay in bed with plenty hot drinks and paracetamol and look after yourself. All the anxiety and stress is catching up with you. You can be as miserable as you like on here, we are all here for you. Sending you a hug

Helen x

Hi Maggie have you got any Covid test you must feel dreadful but you are in the right place sounds like you need someone to look after you but you also I guess don't want to pass it on. Remember Les is having full time care meals cooked for him and fluids if you feel rubbish would have been impossible for you to look after him at home. Keep taking the paracetomol every 4 hours lots of fluids and rest hopefully couple of days will start to feel better. 

Thank you all. I have been great all year and when he needs me to visit I end op like this. Only got out obey vor the loo.  I have plenty of water by my side as well. Nose is more blocked as well. Covid tests are well out of date. Les had one the other day in hospital as he was coughing but came back negative. Just feeling sorry for myself self as I could not visit him. I just need to be well for him but as you say I am so run down and seem to be catching everything at the moment.  Tomorrow is another day,

hope you are all coping in your own way xx

I have cancer. Still very early. 

But I have no desire to tell anyone. Do carers, family and friends think this selfish? 

Not until I cannot hide it,  if it gets to that point.

I told my husband. He cannot sleep. He is lost. He is more than I can handle. He wants to tell people because he needs that support network. So it bothers me whether I put his needs first, or mine. ? I am an intensively private person. But feel bad I deny him his outlet. Seems he wants to protect me from his distress and worry. 

I am at times heartbroken with him. Other times annoyed that yet again it is all about him. Lol husbands hey.

Do family really need to know right from the get go?