Bowel cancer CARERS, FAMILY & FRIENDS chat

Jkee I will let tell Les about that.  Honestly men.  Like you I worry constantly.  Just got to go and ket Rufus out as I slept in this morning as it is 7 am. Fingers crossed for Simon and please let me know how he gets on.  Love to you xxxx

Good morning ladies, how you all doing

Helen x

Morning Helen how are you doing lovely to hear from you cannot pretend it is any easier here Simon on palliative Chemo every 3 weeks targeted therapy every week until his body can longer cope so not much fun just feels like we are in a darkness waiting but as usual he still has his sense of humour he deals with things better then me like Maggie my anxiety has made be ill headaches neuralgia tummy troubles but I'm trying to find joy in something everyday. Hope you and your family are well xx

Hi Helen great to hear from you and I hope you are keeping well. As jkee says still in that dark hole.  It is awful. Jkee is doing remarkably well considering what they are both going through.  As jkee says anxiety, stress, everything.  Fingers crossed Les bloods are okay so he can start chemo again on Tuesday.  Sending lots of love to everyone xxxx

Hello Ladies!

How are you all doing? Helen lovely to see you here again hope you are well. Yes think I can imagine Maggie and Jkee everything that is going on with you both such a horrible position to be in. Think of you both all the time and as usual sending lots of hugs and strength to you all. Take Care.

Vicky xx

Hi Vicky. Yes jkee and I are going through it well not us but husbands. My anxiety etc is playing havoc and I wake up every morning with something different. Today dread pain under left breast so just dare not eat tonight. Jkee too is suffering. I can’t complain as les feels dreadful after his chemo and I feel useless as I feel rotten. 

Jkee how is Simon coping and you of course. 

love to everyone xx

Evening Vicky how are you ? Gosh it's a long road it is getting to be brutal but we are still here Simon is amazing dealing with it all but his body is finding it hard now not sure how much more but pushing through can't say it is easy but I am sure you have dark days so my heart goes out to you xxx

Evening Maggie bless you I am struggling like you headaches pain different everyday just soo tired. Glad Les got his Chemo can't believe I am saying that Simon went yesterday but was delayed 2 hours short staff guess we are used to it now. We had doctor today to disgust respect form gosh that was awful she spent 2 hours here and made us think we had no hope.We have Manchester ringing Wednesday to see if they can offer surgery but she advised Simon if offered to think about it because it is massive and won't help for time we were drained after she left my head is exploding . Wish I could be with you to support you it is a lonely  place xxx

Jkee wish I could be with you too.  I am like you drained. Went to bed as pain under left breast was hurting so bad. I woke up really early as worried it is something  bad. I agree it is such a lonely place to be in.  This morning I am shaky etc with the pain.  Les went to bed at 2.30 in the other room.  Gosh jkee so much to think about. How nice the doctor came out to see you as I doubt ours woukd. Not sure what a respect form is though. 

as always my heart goes out to you xxxx

Evening Maggie not good news today as per usual Manchester Christie hospital phoned while we were at Chemo they cannot operate the disease has spread all the the small bowel peritoneal lungs large bowel and artery going along tummy too much disease so carry on as we are time is now limited .Being told that while sat trying to hold it together on Chemo ward was soo hard just wanted to scream . No more scans we have a pet scan Friday just to see how the Chemo is doing but can't see that will make a difference no words left .Simon is at peace with it I CANNOT deal with the fact I will be alone time to get everything in place where do I start x