Bowel cancer CARERS, FAMILY & FRIENDS chat

Happy birthday Helen and I am glad you had a good day. You deserve it after the traumatic year you have had. 

vicky take your own advice that you have been sharing with us. 

les caanot control his bowels at the moment so have to buy new bedding etc xx

Gosh Vicky did you sense it I have a bad feeling now before appointments but again we all have to put our trust in the experts.Hopefully if the specialist was not concerned it is a good sign sending hugs xx

Happy Birthday Helen how nice the family did a little party you deserve happiness I am sure it was mixed emotions sending hugs to you as always x

Oh Happy Birthday Helen!  What a lovely surprise that was for you. Lovely that your family went out and did all that for you. Yes these things are sent to try us aren't they and I now just wonder will I ever get a break!! It's now got to the stage you wonder if anything is worth `planning` if you're constantly always going to hit a brick wall. My sister's specialist says `try not to worry` easier said than done though. Take care.

Vicky xx

Hi Jkee!

No I didn't sense it. I actually went thinking they were going to discharge her from the breast clinic as everything was as far as we were concerned ok there and it's over 5 years since she had her breast cancer and been ok but obviously with her having the bowel cancer as well these lesions have shown up. So note to self:  When going to hospital appointments don't let your guard down which I obviously did today and don't assume anything which I also think I did today. Just hope it will be something and nothing. Take Care. 

Vicky xx 

Happy birthday! what a wonderful surprise, even if it was bitter sweet with Kevin and Paul not there, you have family and friends who obviously care about you. Nancy x

Hi everyone back from the oncologist Simon was offered 2 choices no Capox because of the heart it was oxaliplatin and raltitrexed BUT because Simon has numb fingers and toes even from one chemo the oncologist was worried this may effect him more was happy to offered just the Raltitrexed but would be less effective so Simon was willing to take a chance and decided to go for both.. The oncologist seems unsure but happy to try and then closely monitor him. The other thing Simon has another lump on his side the doctor was unsure here we go again so Simon had blood markers done but hopefully it is not another Cancer, he also have to have the mri on his head next Friday. So sort of good news still a lot of things we need ticking of before we head back in the dark tunnel no time to relax yet. Hope les and everyone is ok today xxx

Gosh Jkee. Les has numb fingers and toes but his heart was not affected and will probably be offered that again in a couple of weeks. Here you go again another rollercoaster of worrying. It is all we seem to do, it is constant. I don’t think they realise how affected we are and stress is a major cause of illness. Fingers crossed for the markers and let us all know.

les can’t go to the loo and in agony. Everything I say or do is wrong. He is eating all the wrong things and I have tried telling him but get shouted down. I have left it to him today. He had a really bad night and probably a really bad night tonight. He is eating far too much and won’t eat little and often. Well that is certainly not going to help his bowel stitches.

jkee like you I a, beside myself, if we did not care we would be okay but we care so much and just want what is best. 

hugs to all and thinking of you all. 

That's a bit of promising news for you Jkee. Hope it's nothing serious this new thing they have found with Simon. I am slightly better today. Had a good hard cry last night and felt a hundred times better after it think this is what I have been waiting on happening maybe getting that news about my sister triggered right this time. Nothing I can do until she gets a scan but just hope it's something else. If it is something else I can live with that and it's not the inevitable. Got back on to the GP today and she said she gets exactly where I am coming from because what they did with Margaret yesterday taking bloods and now needing to wait on a CT is exactly how they found out about Jay's cancer coming back. So I said to her it's maybe history more or less repeating itself. She said to there is really nothing I can do just now but just try not to worry and she said I know that is easier said than done but she said as you know already nothing can be confirmed until the scan happens  So she has prescribed more short time Diazepam for me just to help me settle again and sleep at night because my sleep patterns have been a bit erratic again this was on the lead up to Jay's anniversary but now that I have this at the back of my mind with Margaret I will worry non stop. I'm just a worrier. So I think I'm going to be joining you in that dark tunnel for a little while Jkee, Hope everyone else is baring up ok. Thinking of you all. Take Care. 

Vicky xx

Hi Maggie Simon is the same with this operation on the small bowel it is low fibre small and often but oh no everyone buying or baking cake and has always eaten fast but won't listen to me he even hid outside the other day so I didn't tell him off for eating large piece of cake. It is a strange one I want him to put on weight for for the chemo but the right food.Then of course he rushes to loo feel  like saying told you so .Keep going we are strong learning from all the warriors on here xx