Bowel cancer carers, family and friends chat

So, Jay just phoned. Not phoned me all day so took it `nothing to report`. Physiotherapists didn't appear today as they were supposed to. The nurse had him up and washed etc about 10 o'clock this morning he said just waiting for them to come and get him to try stairs. Don't know if this will put him back now for getting home as I think him showing the physios he can manage the stairs will determine if he gets home or not. He's not bothered and says when it happens, it happens. He has been let down that often in the past with being in hospital one minute they say he is going home and then its no you need to stay here. If he doesn't get home tomorrow it will probably be Tuesday before he gets home because he doesn't see them letting him home over the weekend and Monday is a holiday again. Just need to see what happens. 

Vicky xx

Nothing much happens over the weekend in hospital we found. Think it’s a bit hit and miss with physios, but hope they get him moving for the stairs. 
can’t bear to look at the death certificate- I fell apart when the man finished saying who would be contacted etc as it felt like Kevin was rubbed out and removed. Daughter took me for a walk around a new store and felt a bit calmer - if I drink anymore cups of tea I’ll float away 

Paul coming down now to see me as he couldn’t face the registrar and don’t want him to feel left out but there isn’t a lot he can do.

cremation sorted now for 18th so need to book a venue for a meal with family.

Been looking at getting away for a break with our daughter which is what Kevin wanted us to do as it’s been full on last 12 weeks - feeling guilty but need a break with nothing to think about. Feel guilty as well as Paul wouldn’t be able to come with all his illnesses. Will see

too much going on hope you girls have a restful night and some sleep sending you all a big hug- we deserve one!!

love Helen xx

Patty I do hope the physios go today. Try and relax as you will have a lot to do when he gets home. Gosh I do feel for you with is, is not. It is raining here.  Very miserable day indeed. 

I am still anxious about it all and I don’t know how torry coped I can’t cope now never mind if he was really really poorly  

you will cope Patty it will be hard but you have the strength.

As sways in my thoughts.  Maggie xxx

And He's Home!  Beard and all!He looks a proper scruff with it but a lot brighter and I don't really care. He's lying in bed just now been a bit of a tiring day for him to be honest. The physios went in and got him walking again this morning he said. They didn't do the stairs but got him to walk out his room with his zimmer frame and up and down the corridor and after he did that one of the physios said he looked a bit tired so left it at that and said they were satisfied that he could go home. Think that we jaunt up and down the corridor was the most he has walked in 3 weeks so no wonder he was tired.  Got sent home with his `sweeties` One pain patch which I thought they were sending home a pack. He is only to get one a week can't see me going to the pharmacy once a week to get this patch or maybe the district nurses with be coming in to do that. Checked it with the ward and they said it was only one that on the perscription to be sent home. It's a 7 day patch so won't get changed again until next Friday he has paracetamol too and a bag of `just incase` pain relief meds they call it when and if he needs them for pain.  These are done by injection so it needs to be a district nurse that does it. It'll take a day or 2 for him to re-settle no doubt but glad he's home.

xx

Dear Patty that is wonderful news - I’m so pleased for you. The pain patch should help him a lot and you must call the nurses for help if you need it. They are still in contact with me now. Hopefully he won’t need the injection but better to have them just in case.

Saw the in laws this mor  if and told them about date of cremation and now looking for a venue so we can all go for a meal.

I feel really guilty as Sally and I have booked a holiday next week which is what Kevin wanted me to do. I just want to do nothing and speak to no one. Paul is happy for us to go as do t want him to feel left out but he can’t travel and is at hospital having his stomach drained. Kevin wanted to buy him a private number plate for his car as they are car daft and spoke about cars all the time. So asked him to find one he likes that can be passed on to his children when his time comes. Can’t bear to think about that and hope he is ok for a bit more time with us as I think that would be too much. 

enjoy your weekend together and thinking of all our friends on here

love Helen x

what a turnaround.  Don’t forget to look after yourself as well. If he in one room then try and eat together or watch television. I am so pleased for you and Helen says and enjoy him being home. 

Helen do as Kevin wanted. Just go and relax after the traumatic time over the last few months. Please just relax to get your strength back. 

I am off to bed now as shattered and try and relax. You are all in my thoughts with large hugs take care everyone all my heartfelt love Maggie xx

Hi so pleased you have a chance of a break until the cremation date you are in limbo so it will be good to see a different 4 walls and fresh air. You are really brave dealing with all this stuff including your son time to take a breath before you have to come back to deal with everything again xx

Thanks Helen! Yes were being registered for palliative care in the community and will get numbers for them if needed and I already have numbers for the district nurses and community physio also as I think they will be resuming things with him as well. A lot to take in just now with regards to meds ongoing care etc but it'll take a couple of days to get things settled. Careres coming in tomorrow apparently not for anything specific I don't think just to make sure I think he's home and settled ok. Just need him to shave off the beard now- only if he wants to though I'm not fussed actually makes his face look that little bit `chubbier` which has been looking quite drawn as well. Thinking of you all. Take Care. 

Vicky xx

Patty I am so happy to hear your news about your husband being home, that must be a relief for you ️

Helen I agree with the ladies, Kevin would want you to have a break and relax️

We got news today that my partner has a clot on his lung..he had a scan a few weeks ago and they called today and said they had seen it. Just when you think things have "settled down"

Love to all as always 

XxAmy x

Thanks Maggie!  

He's just quite happy chilling in the bedroom just now with the TV he's exhausted so just leaving him to it. William our son phoned I let him know today his dad was coming home. He is coming in tomorrow to see him and bringing the wee one with him I think to see her `papa`.  His partner is working tomorrow so he says he will drop her off then come over. That'll brighten his day seeing the wee one he told William not to bring her to the hospital he did once but where he was wasn't very nice for kids to be. Happy he's home.

Vicky xx