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Bowel cancer carers, family and friends chat

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Hi all, thank you for accepting me. My husband has been diagnosed with stage 4 bowel cancer. At present I am not accepting it, it makes me feel sick, panicky, shaky etc. it was a complete shock.  Anybody else in the same situation.  Many thanks

  • Torry just a thought if you keep needing to change the sheets as I did puppy pads are great.  I do hope you are getting rest.  As always in my thoughts xx

  • Has nurses as Kevin has back pain and they are coming back to do drivers shortly. Had carers on phone and they are starting tonight at 6 and coming in twice a day. So that should help us. Going to sort his stoma out next. Don’t need any pads or anything thanks but have already got supplies. It like a chemist shop in here now kitchen is full of medicines. Little bedroom is full of equipment and living room empty apart from sofa and hospital bed. It’s a strange time we are living in but know it will eventually be sorted and in the grand scheme of things it really doesn’t matter. Just got to get through the coming days xx I am pleased I can say anything on here as it’s hard speaking to people as I just break down xxx keep going people xx

  • It is very hard talking to people as I would break down and don’t want to talk to anyone. We all understand and in the grand scheme of things as you say it is nothing. I keep looking outside and it looks like bloody steptoe and sons with everything all over and grass getting longer. I know Les will not let me get anyone in to sort it but as you say it does not matter.  If I could send you a photo I would and then you would understand. So much to do here but hey ho I am going to stop looking at it.  Moan over. You take care and I so pleased the carers are coming later. As always in my thoughts all my love Maggie xx

  • Hi Ladies!

    Echo all your sentiments. Not wanting to go out/see anyone/ feel you'll break down if you do. Went outside to put out some rubbish then came back in again. That's my lot for the day. Big sis going back along the road today she has a bus trip tomorrow with one of her clubs and it's all paid up. She said she would cancel but would lose her money so I have just told her to go. I'm sure I'll be fine one or two nights on my own. I've told her she can come back on Friday if she wants as still not certain yet when Jay will getting home. I'll probably know more after Friday I know they want to work on his mobility before home. He impressed yesterday so hopefully as i said better things to come. Hope you're all bearing up ok. Take Care.

    Vicky xx

  • Hi Patty. You will manage on your own. Put a good film on and try and relax. When Les and I go out he has no problem in telling anyone who he knows what is wrong. I get so upset. He is sleeping a lot at the moment.  He popped out with daughter for 2 hours and now he is asleep again. It really upsets me but he can’t help being tired all the time. As usual all my thoughts are with you lovely ladies love and hugs Maggie xx

  • It feels like he has already gone now, doesn’t look like my Kevin now. Upping the morphine when they come back and possibly sedating him. Truly a horrible time, we are just sitting waiting for something. Just keep moistening his lips and holding his hand and giving him a kiss and crying. X

  • Hi Torry I am feeling your pain right now we had the conversation last night when I am gone it really is so upsetting and we understand your heartache please know we are thinking of you send hugs  xx

  • You are amazing. Stay with him. Talk to him. Just be there and let others do the running around to get things xxx

    i know I will have to face this at some point - and for me my job is an oncology nurse but it’s so much harder being here as a wife and carer 

  • I have no words of comfort just a hug hug and love to send you.  I just don’t know what to say. Stay and comfort and hold his hand  so he knows you are there.  I am so upset for you all my love Maggie xx

  • I'm so used to being on my own anyway Maggie, When Jay was working he used to have to stay away some nights so I am used to it. The only thing was, I knew he was coming home. When the enevitable happens, I know he won't be coming back so don't know how I will feel then. I quite enjoy my own company anyway. 

    xx