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Bowel cancer carers, family and friends chat

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Hi all, thank you for accepting me. My husband has been diagnosed with stage 4 bowel cancer. At present I am not accepting it, it makes me feel sick, panicky, shaky etc. it was a complete shock.  Anybody else in the same situation.  Many thanks

  • Thanks Amy!

    So sorry to hear that! Really hope they can do something. Thinking of you. 

    Vicky x

  • Thanks Vicky xx

    They have given him injections to start straight away which is good. We are just a bit upset that the scan was weeks ago and we are only just finding out this. He did say he had some chest pain before the scan Fingers crossed the drugs work quickly and that he continues to feel OK ( thankfully he only has that as a symptom so far )

    Big hugs

    Amy xx

  • Amy I am so sorry I hope everything goes well. My thoughts are with you and everyone xx 

  • Day one of the new `regime` began. Had the carer in this morning just mainly to introduce herself he wasn't wanting much done today he's having a `lazy day` in bed today (duvet day) so carer coming back tomorrow to at least give him a wash. This is all new to us this but we'll get there. He says he try for getting up tomorrow but for today, he is still a little bit shattered. Had a good sleep last night he said but was awake at 5a.m. this morning because he has been so used to being woken at that time in the hospital with the nurses coming in to take bloods etc. I was in bed last night at 11.30 and all he wanted to do was chat not that I was complaining mind we've not seen one another for 3 weeks but even before when he went into hospital again he wasn't so full of chat or fun or anything and that seems to be coming back now a little bit. Don't know if it's just acceptance with him that he has to live with what he has now. Big sister gone out for her regular Saturday jaunt with he two friends and I'm just sitting chilling watching the coronation. Have a nice weekend all. 

    Vicky x

  • Morning Vicky it must be lovely having him home now. Someone to talk to. Our carers ended up having to do anything as was too late for us.

    Been watching the coronation and wishing Kevin was here with me. Going round to our friends for a coffee and bit company soon. 

    we have booked a trip away and go on Tuesday - feels weird and I feel very guilty about it and Sally says the same.

    I felt very sorry for myself lastnight as it was the first time I hadn’t seen anyone from mid afternoon until I went to bed and guess this is how it’s going to ne from now on. Feels very lonely 

    Never mind sun is shining so enjoy your weekend as best you can

    Love Helen xx

  • Don’t feel guilty it is was Kevin wanted and you need to get your strength back. Relax and enjoy. We all think your string and you too Vicky. Not then ready yet as watching the coronation. It is really warm outside as well. Lots of love and thoughts Maggie xx

  • Thanks Ladies!

    Just had the district nurses in now wasn't expecting them knew homecarer was coming in this morning but can't recall the hospital saying the DNs would be in. Anyway they just came in to do a review of his medicines etc what he's to get and changed over his mucus pad for him (the discharge from his backside)  One of them said to me to try to get him a daily wash at least for the skin around his bottom she said it's ok just now, but if left can become dry and sore. He wants to maybe try for a shower later in the week but still trying to get our bearings just now eventually everything will fall into place.  The nurses said they may come out once a week for now and then if we think we don't need them so much we can scale it back to maybe fortnightly or up it as required. Lovely ladies both of them and Jay had them in stitches so the `old him` I think is trying to make a comeback. Big sister back they all want to see the rest of the coronation don't actually know why they went out in the first place. Not seeing wee granddaughter today after all. William phoned this morning to say that she is starting a cold so I told him not to bring her at the minute with Jay just getting home incase he gets it from her as his immune system may still be rock bottom and something like that could put him back in hospital- again! Take Care All

    Vicky x

  • Lying in bed this morning feeling so lonely and broken

  • Good morning 

    Helen I'm sending you a huge hug. I cant imagine how you feel, but you are not alone.  We are here for you. 

    Biggest of hugs ever 

    Amy xxx

  • We are all here Helen. Just Krupp messaging even though we are not in person we are still with you.  Think of Tuesday and what Kevin wanted.  I wish we all lived nearer so we could just hug and cry and laugh together. Love and hugs Maggie. Xx