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Bowel cancer carers, family and friends chat

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Hi all, thank you for accepting me. My husband has been diagnosed with stage 4 bowel cancer. At present I am not accepting it, it makes me feel sick, panicky, shaky etc. it was a complete shock.  Anybody else in the same situation.  Many thanks

  • In the same boat here too, I think my husband is going downhill fast- I’ve just put him to bed so I have a cry now- he is barely mobile now and I feel so down tonight. I can manage his stoma for him easy but can’t do anything to help with the bloody cancer. He looks so frail now and I’m frightened as to what happens next. Sorry to be so negative tonight - x

  • You are not being negative just absolutely beside yourself. Friend are coming today we have not seen for over 3 years and I have woke up with huge anxiety.  I really don’t know how you cope, remember you are a trooper and get on with it. I hope the cry did you good.  I heard hubby up during the night but I was in a state and did not get up with him. I really feel for you torry.  As always a big hug and love x

  • Thanks for your support, have been awake ages and your mind just runs away so up having a cuppa before I have to start and get him up showered etc. he thought he was doing ok but we got a copy of latest letter sent to our gp and it deflated like a balloon and think it made him realise how unwell he actually is. Will see how today goes but I am starting to feel weary now and don’t know how I will cope. Hope you enjoy seeing your friend today and take care. Sending you a hug xx

  • Torry wish I had words that would make you feel better. I too would be weary. Just cleaned the loo and washed and ironed and I am shattered. I really could do without friends coming. Yesterday I felt okay but today full of anxiety. Like you I feel so alone with all this that is going on. Sometimes not getting a copy of the letter is better than seeing it written down in black and white as it does bring it all back. I do not like to see it in a letter as that makes me worse. I wish I had comforting words for you but try and stay strong. I am just pleased about this site as we can vent, moan, be frightened and everything else that goes with it. As always in my thoughts. Bless you for being a trooper.  Love and hugs xx

  • To be honest, it was a bit of a problem, because its a bit of a job getting things right!.  I remember taking Lactulose, and that helped as it softens the stool, because the tumour was making a bit of a blockage.  As for the tiredness I can relate to that also, I think I spent so much time in bed.  I think also its all the waiting, waiting for results, waiting for appointments etc., your mind plays havoc, wondering what the future holds.  But try to be positive, remember so many people have chemotherapy, radiotherapy and operations and the majority are successful.  Its good that you have some close friends you can talk to.  It certainly makes a difference, I have some wonderful friends, and I will never forget their love, kindness and support.  I was blessed as I had a friend who had a stoma, and had it for several years, so when I came out of hospital I could talk to her if I was a little worried about anything.  It is such a difficult time for you, and my heart goes out to you, and wish I could wave a magic wand and make it all better, but I can't, but I can remember you and hour hubby in my prayers.

  • Hi Mary had.  What sort of food did you or make if you would not mind me asking.  Love and hugs to all xx

  • Hi ...I am sorry I do not know your name...At the time I had the cancer, I could hardly eat anything and my weight dropped to under 8 stone.  I just felt so ill I could not eat anything, my daughter and husband tried everything, and I tried to eat a little to please them, perhaps a yoghurt or a some chocolate.  Before the cancer I had a great appetite and I never thought I would ever get it back again, but I did.  It is so hard for you, as it must have been so hard for my husband and daughter when I was so ill, but I used to get annoyed when they kept asking me to eat something, (I know they were worried and wanted me to eat, to get some strength back) but I got annoyed, as I could not eat..I love them both and can understand how they must have felt, but when you are ill all you want to do is be in bed.  I must add that my faith certainly helped me through the most difficult time.

  • Thank you for your reply. If you have not read all the posts hubby starts 3rd chemo next Tuesday if bloods are okay. His is large and has to take laxatives and a low residue diet. He is losing weight but eating. He gets tired and on a morning has a really bad head. It is also in his liver. I am pleased you got through the terrible disease. Believe me your husband and daughter would have suffered terrible as I and everyone on here do, not knowing what is best, getting tired, anxiety, crying etc. unfortunately we are not church goers but a good friend is. I have lost weight with worry etc. I am pleased you are now coping well. Maggie xx

  • Oh Maggie, My heart goes out to you, its an awful situation you are in, but try and be positive, as much as you can, because that is what hubby wants to hear. That is what I wanted to hear, when I felt I was going to die, they lifted me up with their positive outlook..and it worked,  Like your friend I am a Church goer and I know without a shadow of a doubt my faith helped me through the dark times, my thoughts and prayers are with you x

  • Good morning ladies. My thoughts are with you. Woke up with anxiety etc again but trying to put on a brave face for hubby.  Torry and patty how are you both. Mary char thank you for your comments and I am trying so hard to put on a brave face. As always thinking of you. Maggie xx