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Bowel cancer carers, family and friends chat

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Hi all, thank you for accepting me. My husband has been diagnosed with stage 4 bowel cancer. At present I am not accepting it, it makes me feel sick, panicky, shaky etc. it was a complete shock.  Anybody else in the same situation.  Many thanks

  • Patty please the news seems to be a bit more positive, buoys you up a bit.

    my husband was poor yesterday and very tired, looking very frail now and can’t be bothered with much. Must be feeling rough as he didn’t want to go out in his car with my daughter which is his pride and joy ( it’s a sports car) so we are having a quiet day and trying to get something into him. Fingers crossed he feels a bit brighter tomorrow x

  • Patty , pleased the news is more positive today..sending a hug as always.

    My partner had a scan today to see how the chmeo is working...not sure when we will get the results. Hoping for positive news.

    Love Amy x

  • Where do I read it xx

  • I know what you mean. I read the post. Sending hugs and positive vibes to everyone xx

  • Go to the posts on bowel cancer forum and look down the list until you see one headed `Updates on Jay`.

  • patty’s I have just read your post. This is tough and fingers crossed for positive news.  I can’t believe it you are a trooper. I do not know how you cope. I am still not coping with it as after second lot of chemo and laxido up to 3 times a day as his is large in bowel and liver he is up quite a lot going to the loo. I am finding this terribly hard to deal with especially 99% on my own with him. I can’t bear to see him looking poorly or extremely tired. I admire you all. Again hugs to you troopers.  Maggie x

  • Thanks for your kind words Maggie. I am absolutely broken inside and as I said before I just feel that everything has been for nothing. I know it's the luck of the draw with cancer you either beat it or it defeats you and somewhere inbetween you get a reprieve before it decides to make an unwelcome return which happened to us and just robs you of everything you had hoped and planned for the future making everything uncertain.  Everything was going too well for us at the beginning, I think. He was sailing through his treatment the chemoradiation to reduce the tumour for surgery then getting it all which we were absolutely ecstatic about and saw us getting our lives back together only to get slapped down again five months later with it coming back. I just have to try to grab on to the hope that they can give some alternative treatment and he will be able and fit enough to carry it through. It's been a sort of up and down day for me I have been sitting doing all my `pro-active` stuff and at least getting some answers back. Then I'll maybe do something that both of us do together an instance was I was in the kitchen earlier shoving a pizza in the oven. I have my sister staying with me for a couple of days for company and so I was splitting a pizza between us as I usually do with Jay and a wave of sadness just came over me and I thought how much longer will we both be doing this. It's little things like that that suddenly grab you something that you probably took for granted before. I think from now it will be days like this I just hope it doesn't start to consume me.

  • Hi, I know you must feel like crying, its such a shock, one minute life is great, the next you have the uncertainty of what the future holds.  Anyway you say you would appreciate a nice story...so let me say last year was a complete nightmare, like your husband diagnosed with bowel cancer, had chemo/radio, and an op last October, now feeling so well, at the time I thought I would never get better, so try and stay positive however hard that seems, so mine is a nice story and I am sure hubbies will be a nice story.

  • Oh patty I do feel for you. My thoughts as always are with everyone. I know about it is our time as this was ours after retirement in October then bam. I was truly looking forward to a holiday which we have not had for 15 years for one reason or another. Doc put me on mirtazapine which I took half last night and slept for nearly 9 hours. That is no good to me as I need to be with it for hubby and I still feel foggy and shattered. I am in bed now as hubby watching another programme. Sad that we dont all live closer so we could actually support each other rather than by text. As always a huge hug and stay strong x

  • I truly feel for you Patty. Our futures are being snatched from us and it seems there’s nothing we can do. I hope we all have better days and we can cope as best we can xx