more chemo

Hi slash1953 

So sorry to hear this and I get exactly what you are saying . My mum has just gone back onto treatment every two weeks and it’s an intensive schedule . She is handling it well but there is a lot of other clinics she has to attend and sometimes it’s all a bit heavy !  However our plan of action is to focus on the days when she can get out and about . Those are the ones that keep the balance . We are working hard as a team to get to and from them but she is the one having to go through it .

Do you know how many cycles they are proposing ?

Court 

Hi slash1953.!

My husband Jay suffers with this mucus thing you talk about that comes from your back passage. He had a bowel resection operation in July 2021 and has had this since. They have told him its just something that is always going to be there. Do you have a stoma? Jay has a permanent stoma. He has been more or less told its something he will need to live with but its not serious. He gets very down about it too and has to wear pads to stop it leaking through his boxers or disposable pants in bed at night Apparently the rectum still gets `signals` that it wants to pass `poo` although it now comes out his stomach into a bag. I think there is a colostomy UK website you can go on and they tell you more about it. Take Care. 

Vicky.

not as yet,still waiting to see them...

hi Vicky,yes I have a stoma and am getting on with it just fine. Its with all the other stuff put together thats gutted me. I had my prostate removed in 2020 and all clear then 18 months later rectal cancer. Had the tumour removed but since then ive been leaking urine like you wouldnt believe and thats another op to hopefully sort that.

Ive got great support but its now getting to me where its like whats the point? And to top that,just got shingles!!!

Hi Slash!

I get what you mean! Jay is the same so many `bags` coming out of him. Don't think he envisaged spending his retirement like this!! He has just got over sepsis- or urosepsis think they are one and the same. He was rushed into hospital in January because it was apparently really serious, and he ended up in the High Dependency unit. He was getting chemotherapy up until October/November last year and was admitted to hospital with dehydration and because he had low kidney function. Turned out it was the chemo that did the damage so it was stopped and when he developed sepsis in January they had to perform a nephrostomy procedure which means he now has another two bags attached to each side of his back but they are the adhesive type like his stoma bag and stick to his skin so they don't hang down off a tube.  He's so fed up now of emptying bags all the time and like you he thinks `whats the point`? but he keeps going- or tries to so that's the main thing I suppose. It does get to you. Its gets to you and those around you who have to watch you going through it. 

Vicky 

Blimey,thought I had it bad? Poor man.

Are they all permanent? Nothing worse not seeing light at the end of the tunnel just goes on and on and Im sure you both feel the same? I hope things get better for you both? x

Yes as far as we know the bags are permanent. He has a thin plastic wire coming out both sides of his back with a `tap` at the end and this is to drain his kidneys and he has his stoma and a catheter fitted as well. He worked for 40+ years and had never seen the inside of a hospital or GP surgery for mostly all of that time. He has never been one for going to the doctors the only time he was in a hospital was to visit someone and now 4 years into his retirement, all it seems to be is hospitals, doctors, clinics etc. It does get quite draining at times but what would the alternative be?

Hi Court so sorry your mum is back on treatment, what a lady, sending her best wishes and hugs xx

Oh thank you Nelly1955 . She is holding her own , getting out and about most days . 

How are you getting along ? 
Court 

Same here, Last time I was in hospital was a car crash in 1979,now its all we seem to do now. 35 appointments last year!!