I am doing OK my CEA levels are rising which is concerning me but not my oncologist he said they do on treatment it's 17 at moment started at 10 before treatment,I'm just on 5fu after a positive scan.
I have my aunts funeral today and have my pump attached which is not ideal but nothing I can do they tried to rearrange fir me but appointments are like gold dust at the moment, I haven't mentioned it to my cousin as I know she wouldn't want me to go but I need to say goodbye and also I want to be treated like anyone else.
Hope your all doing well warriors let's keep fighting the good fight. Xxxx
Hi HazG.
I'm also on 5FU. For me the connected days (0.5 in hosp + 2 day portable pump at home) seem to be by best days... maybe due to steroids.
So hope the same for you and wishing all the best today - hope aunt gets a wonderful send off.
Big virtual hug

Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007