Worried, struggling, scared to eat

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Hi guys 

Know it's been a while since I have updated you on everything, 

I had my operation on the 6th January, I have ended up with a permanent stoma, got out on 12th January, they told me to eat and drink clear fluids, like jelly, ice cream anything soft, does that include Ready break? As I'm getting sick of jelly, yogurt, ice cream and clear soups.

They never really told me what I can eat and starting to feel hungry and also at a point that I'm scared to eat Incase my stoma not on properly.

Also when I put my stoma on today there is a little bit if skin showing at the top is that ok? I also find it better to do my stoma laying down because of my flabby belly bit at the top of my bag, Which is how I did it in hospital, but only really change my bag once myself. 

Can the hole be snug around the stoma I'm stressing myself out about it all and over thinking everything and my nurse not coming until Thursday, I need all the help I can get as so scared right now 

Much love bigbird x

  • Bless you Bigbird. 
    I was struggling to then I joined Ileostomy, colostomy, urostomy and any other stoma support 

    they helped me so much. They’re a brilliant group. 
    Please can you join that group and get loads of advice and support 

    PS. You definitely can eat. Please can you also say if you have an Ileostomy or colostomy when you have joined. 

    Ann
     ‍Art

  • Thankyou so much and I'm new to this, what is the difference between the two?

  • The stoma support group are people experienced with living with a stoma lots have had bowel cancer. There’s masses of advice and lots will pop along that have had the same

    Diet, product advice , application of the things anything that worries you others will have tips  

    After two weeks I was lacking confidence, I got the stoma nurses to see me urgently and that sorted out my issues then I asked for advice in the group to build my confidence  I was out in no time stayed away at six weeks and flew to Spain in the spring of following year 

    I lived a full life the stoma will not stop you from doing anything once you get your confidence you’ll be away 

    YOU CAN COPY YOUR ABOVE POST AND PUT IT THERE 

    Best wishes 

    Ann
     ‍Art

  • Thankyou, I'm sorry but I ment between the ileostomy and the colostomy 

  • ⁸Hi Bigbird,I had my stoma beginning of November,  they say a soft diet, you can have sandwiches, white bread, mashed potato, by the end of 2 weeks you should  be eating normally, bring things in slowly, if you have a bad reaction in your stoma, stop, I found i couldn't have orange juice, oranges or eve jaffa cakes, some things make your stoma windy, cabbage, my favourite veg, I do have some wind, but I think it's om, it doesn’t smell, due to the charcoal filter on bags, and if your bags not producing much, and you have wind, it does help to ease the mind to know its working. I had an ileus, just a week before my stoma put in, I had a robotic LAR,  out in 2 days, but then ileu,basically mu bowel went to sleep, then further complications I had emergency op and stoma in, it's a change, I'll get used to it, but I hate it, but food wise I was eating potatoes, mashed carrots, turkey and gravy whilst I was in hospital for a week, normal food when I got home, just remember to peel apples and pears, tinned pears are best, as they're soft, they say no nuts as they can swell and block the bowel, but please don't limit your food, be cautious, but you need the strength to heal, it takes a lot out of you does surgery, you need to build back up. I had salmon,which is a great flavour for you and good too, with mashed spuds, cabbage,cauliflower and carrots for my evening meal, I'm very windy, but after my bowel shutting down, I find it good to know the stomas working. Just add things in slowly, and Artsie Ann is right,join the stoma group, so much info there. Take care and don't panic. Rosie xx

  • Thankyou so much Rosie, my specialist nurse said I can have mash potatoe from Monday 16th January they didn't tell me what else I could have after that I'm craving cheese and pickle sandwich right now too haha, just feeling fed up as had three melt downs today which is alot of strain and my aunt is helping me this weekend due to my eldest working, she got home I had a melt down that skin was showing around the top of my stoma, I was overthinking everything, it does have to be snug doesn't it around the stoma? 

    My youngest daughter is on only 6 and she cried because she saw me so upset, which made me worse, 

    I know this sounds crazy as everything is confusing me, but I'm not sure if I had an ileostomy or a colostomy that's how it's getting to me 

    Thanks for your advice 

    Paula x

  • Hi Bigbird

    Left side colostomy, right side Ileostomy 

    The bags are exactly the same but the diet is different Ileostomy’s have to take more time to eat higher fibre

    Theres lots of info if you click on the link below 

    community.macmillan.org.uk/.../

    Ann
     ‍Art

  • Thankyou so much xx

  • No problem 

    My love go to sandwich was white bread with real butter with salt Ileostomy’s need extra salt then fish fingers in batter with thick mayo 

    You take care. Please don’t worry about food there’s masses you can eat and in time you’ll be having chocolate and wine x

    Ann
     ‍Art

  • Just one more thing stoma bag needs to be snug doesn't it but not to snug, I find doing mine best laying down like I did in hospital because I am the larger lady 

    Xx