Looking after my husband at home after removal of tumour

  • 18 replies
  • 129 subscribers
  • 1563 views
  1. Morning  my husband has bowel  cancer had a massive  mass removed after having a blockage  last weekend  what a week think after a few set backs  he may be coming  home what do I do with him what can he eat he's  only had 1 day in hospital  on food liquid food no body  has advised me can he eat normal I'm soo scared 
  • Hi jkee

    I can understand your fear. The colorectal nurses should advice him on diet. 
    I had an Ileostomy so my diet was drastically changed after my LAR. It consisted of low fibre small portions 

    Does he have a colostomy or Ileostomy ? 
    If you’re unsure you could phone the hospital or here  for advice 

    Best wishes 

    Ann
     ‍Art

  • Hello  ,

    As Anne has said, the colorectal nurses or enhanced recovery nurses will probably load you with info. Do ask to meet them or speak on the phone if you are not sure. They will put your mind at rest. There is also the MacMillan helpline. 

    I’m about to have surgery & won’t know until I wake whether I’ll have a stoma of some kind. Either way, diet will be low fibre (low residue) to start. Post recovery is also about nutrition, protein to help cell regeneration & reduced processed foods. Veggies/fruit have been limiting for me pre op & will hopefully slowly be introduced. Smaller meals more regularly are also advised post surgery, so rather than 3 meals have 5 or 6 small meals.

    Good luck & wishing your hubby a good recovery.

    B

  • Bless you thankyou you seemed to have lots of information all I know he had right side blockage top no names or where quess when i see paper notes I will know good luck and thankyou  bowel i think removed sew it back to colon was full of fluid

  • Ann all I know cut away the mass then sewing back to colon the bowel will know more when i read the notes Im afraid not really took on board names from macmillian just in shock

  • Hi jkee

    One step at a time. Whatever operation your hubby has had the bowel will be sensitive as it won’t like being pulled about 

    Mine was rectal cancer which is different 

    The hospital will give you all his dietary needs and you will be able to eat together when he’s home 

    I sat to the table and ate with my husband straight away. The exercise did me good , although I did eat on the sofa at lunch time 

    Just focus on you at the moment the hospital will look after your husband  make sure you eat and rest it’s vital that you take care of yourself as when he’s home you’ll be busy busy  

    Once you find out what operation he’s had then the medics here can advice you or others here that have had the same operation if his hospital are difficult to talk to

    I hope you have an okay weekend  remember look after you too 

    Sending you a hug 

    Ann
     ‍Art

  • You have been plummeted into this very quickly as an emergency. I’ve had time to digest & plan. I am sure they will take time to explain everything that has been done. Plus what will support recovery. They will support you to do this. Sounds like you’re already thinking ahead to get things right, your husband is in good hands with the hospital and you.

    It’s natural that your brain has gone into fight or flight & doing all the over thinking & panic. Breathing exercise & mindfulness really will help you.

    There will be people here that share your experience that will give you some reassurance.

    Big virtual hugs.

  • Thank you I think because we have had 2 emergency first one rushed in at christmas found blood clots said he had a bleed somewhere but come back sent home with covid the week later rushed back with a blockage found mass we dont really know what next step is apart from waiting for 2 weeks results feels like I'm running on empty but yes think it will hit us both when home thankyou for listening

  • Hi J kee my husband had a resection in Oct i you search online with he operation type you will find diet info, but NO seeds hard fruits, nuts etc or veg till it heals inside just a low residue diet pasta, mash soft foods etc my husband has done well with op but chemo is really boring him as he cold affects him and he can go out at all at moment hope all goes well x

  • Hi

    Glad your husband id coming home.

    I am 5 weeks post surgery and really strughled with food. Does your husband have a stoma? The diet is different if he does.

    If not i was advised to eat anything. Although very careful i suffered severe stomache ache and constipation. I believe each trust offers different advice. I felt ill and the pain was horrendous. I asked someone who was advised to eat low fibre foods. On saturday i began this diet eating chicken and mash with mashed carrots. I enjoyed this meal and for the first time slept with no discomfort. 4 days along and I am finally feeling better. I will continue this diet and gradually introduce new foods. Its a small price to pay. Just wish i had known about this on being discharged x 

  • Hi POPPY60 he has tummy ache has laxative but nothing working he has been put back on iron tablets which no sure why he was anemic at hospital at Christmas but had no iron tablets when in for his operation. I will cook chicken carotts and mash tmorrow x