Hi everyone.
So the MDT have has their meeting about me, my colorectal nurse called to inform me my MRI also came back clear (yay), however one thing that concerned me is they did notice 2 slightly enlarged lymph nodes on the MRI, however the radiologists aren’t concerned about this and the size does not suggest cancer.
They’re going ahead with the TEMs procedure (minimally invasive surgery), this was booked in for the 2nd as the surgeon is on AL but they are going to try and bring this forward (26th august)
I also asked if they can give me any indication of the staging of the tumour so far - this is where it gets a bit confusing. She said well we can’t actually do this yet as we haven’t found a cancer (!?!), there have been high grade dysplasia, low grade dysplasia and normal cells found from the biopsy’s from the polyp. This was news to me as I was told I have bowel cancer. The nurse advised obviously we can’t say 100% until we take the full polyp out and remove it.
I am suffering a bit with a yeast infection which started to come on slowly and yesterday became noticeable so I ordered some treatment, sorry TMI - I do also suffer with recurrent yeast infections and have had them many times) could this be a reason for the swollen lymph nodes? The MDT do not think this is a cause for concern and the nurse said that they could just be my lymph nodes as that was my first MRI. Does anyone know reasons why the lymph nodes would be enlarged in that area without it being cancer?
I am in two minds about this. On one hand this is really good news, however the lymph node thing has concerned me!
Hi Leighsp. Yes infection can cause the lymph nodes to swell - see below. I think you’ll just have to put your trust in the surgeons and once the tumour is in the bin then they’ll confirm the staging. Yes no spread is good news
www.macmillan.org.uk/.../bowel-cancer-and-the-lymphatic-system
Thank you Karen! Do you know what the MRI would show with rectal cancer, and what ‘clear’ means? I’m going to have a discussion with the doctor (he’s currently on annual leave) so hoping to clear up answers then, but do you know it shows if the polyp/tumour has started to spread through the bowel wall? X
Hi Leighsp. The ‘clear’ bit means that there is no spread to other organs which is good. From my mri they told me that the tumour had spread into the bowel walk but not through it and they suspected that 2 lymph nodes were affected. The histology report after surgery showed that 17 lymph nodes were removed and 2 were affected so I was stage 3. My friend was same initially staging but the histology showed no affected lymph nodes so she was stage 2.
www.macmillan.org.uk/.../staging-and-grading-of-bowel-cancer
Kareno62 thank you, like you say I will just have to trust the experts! At the end of the day they know a lot more than me.. plus if the whole MDT agreed tems was the best way forward I will have to look at this as a good sign. Surely they wouldn’t want to waste time with this procedure if they believed the nodes could be affected! Hoping they are able to bring this forward to the 26th xx
My mum’s were called “reactionary “ on the scan prior to starting treatment . My understanding back then was they may react to the cancer being present but not necessarily invaded by cancer . After pathology she had no signs of active cancer cells in her lymph nodes but I was not quick enough to ask if there was such a think as dead cancer cells ??
Good news for you . Fantastic result so far and onwards to getting this resolved .
Court
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Hi leighsp,
I hope you dont mind me messaging, as I see your experiences all happened over a year ago but I'm struggling to get some peoes experiences with the TEMS proceedure. Your experience is very similar to mine. Rectal polyp with high and low grade dysplasia. I'm booked in for 08th January and was wondering if you could give me some words of wisdom. Re: proceedure, recovery, how long you were in hospital etc. Hope you are all recovered and looking at the whole experience in the rear view mirror.
Regards gosh
Hi Gosh
I opted for the LAR surgery in the end rather than TEMS. I was referred to a different surgeon after my diagnosis as he could perform TEMs, he did further biospsies and these cells were more suspicious of cancer. I was given an option of tem or LAR by the MDT and after consideration I went straight for the surgery. Pathology came back cancerous T1 stage 1 but there is every chance I would’ve been fine with just the tem but as im a naturally anxious person I thought it would be best to go for the surgery.
in the end I’m glad I opted for LAR even though recovery after stoma reversal is difficult. Happy to answer any questions and hope all goes well with it :) x
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