Hi, after googling some of the clinical stuff on my letter, my prognosis has come at as poor and don’t seem to have much chance of survival. When I was in my consultation with my consultant he started on about prognosis and complex cancer. I hadn’t long had my op. So we didn’t go into it. I was told I was cancer free. when I saw him again to sign for chemo he asked did I want to put my body through this, so now I’m thinking he didn’t feel there was much point,. From what I read DRS and OS is very poor. I did ask to speak to a doctor last w eek but my chemo nurse phoned .a s I tried to have a talk about it with my husband. She said my bowel looked healthy and there was no spread, and I was having chemo which was the belts and braces. When I said about my letter she said yes I was higher risk but they deal with that everyday. She knows I suffer from extremely bad anxiety, I remember after the op one surgeon said we will treat this as a chronic condition and keep a close eye on you. I’m hoping to get a call from my GP tomorrow. I have an oncologist phoning on Wednesday to talk to me before I go into my next chemo cycle. I am just on my week off, I feel unwell. I went out last night for my grandson ‘s birthday, I haven’t been out for anything so long like sitting in a restaurant. I felt panic. I was going out every day but not in these surroundings.I don’t know how much is I fee weak from the chemo or my thoughts or just a bit of both. I just want to cope and enjoy life a bit. I’m dreading cycle 3 . Sorry for the long post. I have no pain in my body just the constant ache that I have from this hernia. I just fell low and tired so my mind won’t rest.
Hello Nelly 1995
I am so sorry to hear you are feeling so anxious and low. You sound like you need a lot more support than what you are getting and a huge hug!
I’m sorry I can’t give you any advice on this however I hope that the call with your GP and Oncologist this week will clarify all the uncertainty you have. Maybe a good idea is to write everything down today that you want to ask so you don’t forget during the call as for some reason my mind would go blank at the time. Also having someone with you during the call that can listen in as I found it didn’t take all the info in myself … too much at the one time. They could write stuff down too so you can go back to it and read later once you have a think through it all.
Hopefully you will feel better once you have spoken to both and make sure you tell them how you are feeling so you get support for your anxiety too.
Will be thinking of you this week. Remember your not alone going through this. There is lots of help.
Catz
Hi Nelly 1955
i did the same … turned to Dr Google which resulted in a lot of anxiety as you read and think of the worst scenarios. It did me absolutely no good and none of the things I read and worried about directly applied to me.
I stopped reading and focused on my health… the parts I could control and started thinking positively and doing things to help me stay positive and distract me from what was going on or what I though might happen. I know this is still hard to do but it’s better for you especially when going through treatment and I look back and reflect and know the times I kept positive and active were the times I managed my treatment and recovery well. Your mental health is just as important as your physical so I hope you can get the support with your anxiety and feelings that will help you get through this.
best wishes
Catz
