Gosh where to start.everyone is different.I have an iliostomy but manage a range of foods.although more than 2 glasses of red wine does make "fred" a little runny.he doesnt seem to mind gin tho.! Salad-I eat cucumber with skin on but chew well.that does seem to be the answer.I tend not to eat coleslaw or lettuce but thats just cause Im a wimp and havent tried them.they say to try small amounts and see what happens.rice salad etc is ok
Personally Im fine with peas,beans,nuts,seeds etc and eat loads of root veg.I tried home grown leeks the other day and had a bit of tummy ache.maybe a bit stringy.
I do tend to peel fruit and dont eat the lovely crispy skin on a baked potato.
I think the way to go is try small amounts,chew well and generally give it a go
Hi Fitzhugh, I get the same following my oxaliplatin. Helps to keep fingers warm and keep moving - don't sit for too long. That's hard for me and sometimes my feet are so numb I can hardly get up the stairs! But it's better after a few days. I agree with Katz51 that there are worse side effects, like feeling sick and tired. Oh well. We will get through it, and I am looking forward to 2022!
My wife suffers badly from this. She's had it since the very start of her treatments and even though she tries to keep mobile it still affects her. I was hoping that someone on the forum would have any suggestions/recommendations for helping combatting it but it seems that cancer sufferer's just have to accept it as part of their treatment.
Hi there! My tingling lasted about 4 months - I took lots of vitamins after chemo, massaged my feet and hands regularly and the effects gradually wore off.
Hi I had four cycles of CAPOX in Jan/Feb/Mar of this year and I would say that the tingling (neuropathy) went after about three months, I am having four cycles of CAPOX at the moment, just finished cycle three and the tingling is back but only getting it for about a week after my OXY infusion, I read somewhere that high dose vitamin b helps and I have been taking this, so it may be this that is helping or just a coincidence, I would add that you should ask your Oncologist before taking anything, I am also suffering with hand and feet syndrome which is off the CAPE tablets, it feels like my feet have been badly sunburned and my hands are starting to lose fingerprints and are going a red/purple colour and starting to peel, have been using cream with 40% Urea content for feet and and Aveeno hand cream, take care cheers john. xxx
hi yes you can get it in the nose and mouth, also what's called first bite syndrome which gives pain in the jaw when you start to eat but that is off the Oxy, just a word of warning about not telling your Oncologist about the tingling as this can become permanent in some cases, and sometimes a 10% reduction in the dose can make all the difference to the tingling without affecting the chemo's effectiveness. take care cheers john.
