bowel cancer

Yes I no. Try yo be positive,  don't lisen to the doom and gloom mongers. I made myself a promise to only have positive people around me it does help, my oncologist told me to try the Mediterranean et and keep active.Ive been stable for about 18 month. Once you get a treatment plan and settle into it things will calm down  Stay strong and positive

Thank you x

Hi  and a warm welcome to the board from me. This must have come as an awful shock but there are lots of options available and the various specialists will get their heads together and decide on the best treatment for you. Please stay away from google - it can be misleading and scary. It’s normal to have a couple of weeks wait to see the specialists as it gives them time to get all the scans back and decided on a plan. If you want a positive story then have a look at courts profile

Please keep posting and we’ll be happy to help you through this

Take care

Karen x

Hi 

It must be frightening for sure to hear that cancer has spread ! The liver is however a big robust organ and depending on the size and location of the tumours there are still treatments available despite a spread !

To put that in context my mum had disease in segments four through to eight but one to three remained clear . You will discover there are criteria for most procedures but most people with a spread go straight to chemotherapy and that can be a good thing ! Not only does it work systemically on microdisease but it can also start working on the visible disease ! It becomes a case of managing the disease with often different specialties getting involved . Sometimes chemotherapy not only offers stability but shrinkage ! Depending on the size some liver patients make it to centres of excellence  for their liver where the surgeons can get to work . Others get input from radiologists and use radio frequency ablation and others use various chemotherapy options or now Immunotherapy too to control the disease !

If you click on my user name you can read my own mum’s story as she navigated this along with her team !

At the beginning it is totally understandable to think you are being forgotten about as the process to gather the information and wait on the various MDT meetings to form their opinions on the best treatment plan for you takes time ! Then all of a sudden there is movement and it does  start to feel as though something is being done !

Our helpline staff are there to chat this all through with you 0808 808 0000.

We are all here too !  
https://bowelcancerorguk.s3.amazonaws.com/Publications/TreatingAdvancedBowelCancer_BowelCancerUK.pdf

This is quite a good leaflet to give you a bit of insight into all the various approaches and to get familiar with some of the language too that your team might use !

Take care and as you have seen already lots of support here for you as you find your feet with all this information.

Court 

Thank you that’s very helpful 

I thought because it was all taking so long they were writing me off 

I’m not thinking logically 

such a mess 

I will look at the courts profile 

Thank you so much for the information 

it gives you hope 

so very pleased your mum has come through 

thank you for sharing with me x

Many thanks Karen 

1. I will try and keep away from negativity x

Hi Darcyolly, if there is one piece of advice to take, stay off google. Unfortunately I didn’t take it and I’m an anxious mess. Yes I’m inpatient and want everything done yesterday. I think its because its cancer and I thought it would be treated straight away. Was I wrong., the waiting is the worst. I had scans today, I just worry myself sick, I tried to look at the internet for the positive, no didn’t work. I’m sending best wishes and hugs xx

Thank you . Yes I’m just like you 

guess it just doesn’t work like that 

thank you for your support x

Thank you. Xx