The long wait between CT scan & treatment call from team on Monday

Sorry - just had a wobbly - fell a bit better after 1h gardening

SwimWalker

I think every emotion gets amplified in that horrible waiting period . Great idea to do something productive , great effort . 
It really is torture at times .

Court 

I thought I was being clever arranging for the grandchildren to come over to keep me busy but unfortunately something went wrong with their car yesterday- too much planning.... Good to know that there are people listening here tho - thanks

Oh no ! How disappointing for you ! Hope they get it fixed and you can get together soon ! 
Nothing like children to keep you busy ! 

We are always here !
Take care ,

Court 

And now I'm now in cancer flavoured limbo - feeling a bit reassured but in limbo all the same. When someone eventually rang I was told 'I'm afraid we couldn't discuss your case as the colonoscopy failed' 'has anyone given you the results of the ct scan yet?'  Wow - thank you.....

The ct scan result shows no sign of cancer elsewhere at the moment which is a real weight off my mind. However I'm at a loss as to why no one mentioned to me that the colonoscopy was unsuccessful as I see from the internet that so many do fail. 

Anyway net result Is that I will be sent an appt for next week to discuss an operation. That is as far as I got. Not very far.

I have been assigned a 'colorectal nurse' who sounded very nice however yesterday her tel no cut off - I'll have another go today

Great news that there is now spread . Phew , but I can see how frustrating it must be to not have gained more information from the colonoscopy.

Did you manage to get in touch with the nurse ? Typical it cutting off .

Hope you have had more success today with it . Really odd they did not mention the colonoscopy. You would have though it was a reasonably important detail to miss out .

Take care ,

Court 

Maybe I'm being too nice on the phone - when I get to the right person I think I'm going to have a wobbly....it sounds selfish but I really do need to know how I stand

I am in the same boat at the moment, i have recently diagnosed with rectal cancer with a secondary on my liver.

I am hating the wait between scans etc, seems an age but there only a week or so apart. 

My thoughts are as am waiting the tumours are quietly doing there thing , a big worry.

Am due to start chemo soon,  i am bit scared, but strangely looking forward  to starting, as at least i will be fighting back.

The period between scans, consultations and tests are an anxious time.

I wish you well with your fight

I did persevere this morning and eventually got a call back from yet another nurse who has been assigned to hold my hand. Let's hope this one stays the course

I didn't have a telephone wobbly but did ask for all the medical details that this cancer nurse could give me. Where is the tumour, exactly where is it, how big is it, exactly how big is it etc etc so I now know that it is on the left side of the descending colon, that it is about 6cm long, that I may have 2 operations the main 1 & a 'tidy up, take off the polyps' op. Chemo/radio may follow - this nurse was willing to answer almost any question I put to her. It was a real relief to talk to someone who was willing to give me some concrete, biological facts. 

I haven't got the appointment for next week as yet tho...that will be another hurdle I imagine

Thanks for your good wishes Grampsie - I agree with you, the wait at the beginning after the diagnosis seems eternal, I have been trying to keep myself busy busy busy.

As you say I too can feel the adrenaline of the  approach of treatment and will be so glad when it starts, that will be the beginning of the road. 

Somewhere on this site is a leaflet called 'Questions to ask your healthcare team' which I found very helpful - it gives you all sorts of possible questions to ask/options for treatment etc etc