Hello everyone,
just wanted to jump on & give a quick wee note about a side effect of the Oxiplatin infusion. Just when I left the hospital after my 2nd infusion I just have breathed in some cold air & felt like I couldn’t breathe...
(My partner was going to try & take me back into the hospital & not drive us home)
THANKFULLY one of the nurses (before round one) warmed me this COULD happen & told me not to panic! She said, it will feel like your airway is completely closing over, but it actually isn’t. If you DON’T PANIC you’ll be fine...
So with really struggling to breathe (or speak) I was typing ‘THIS CAN HAPPEN, DON’T PANIC’ to my partner on my mobile who was looking HORRIFIED 
it’s only now (I’m in the middle of round 3 that I can bring myself to put it on here as I was traumatised)
My oncologist gave me an option to remove the Oxiplatin infusion altogether, because she said most people were that traumatised they couldn’t face another infusion. If I took that option however, it would mean a further 12weeks of the capecitabine tablets (on top of what I already had left to take which I really couldn’t face!)
She spoke about reducing the dose which I agreed with &
I told her I also had also read on this forum that infusing iver 4 hours instead of 2 couid also make a good difference to the side effects. She also agreed to this... THANK GOODNESS & I realise how
ucky I am to have such a great oncologist!
sorry for the long post but just thought the information might come in useful to someone )though HOPEFULLY this will not happen to you!)
To round off, WRAP UP WARM & DON’T PANIC
Wishing us all well on our journeys...
Suzy
Oh your poor mum!
Glad she was able to cope, yes! tepid flask & lots of wrapping up warm!
Only my eyes were exposed the next round! Mask, scarf AND a big rug thing pressed to my nose & mouth leaving the hospital, I must have looked well crazy 
I think, like your mum it’s probably the one thing I will remember & will be forever grateful for the nurse who pre-warned me,
Suzy
Thanks Karen,
Just in case it helps someone else, I know if I hadn’t been told I thought it would have been lights out time! Scary stuff!
But I’ll know for if it EVER happens again (& really really hopefully not)
I have found this forum invaluable for information & encouragement, especially in giving me the confidence to speak to the oncologist & let her know I have read others experiences & ask for what I need. (I really know that without this forum I wouldn’t have known what to expect & also wouldn’t have known to ask for adjustments & figure out what was normal & what was extreme!)
Thank you so much to you all for all that you to & to everyone for sharing their experiences. It really does help so much
Suzy
I REALLY didn’t know what else to do! My poor partner was petrified!
