My daughter was dx in August 2020 with bowel cancer had a colostomy bag in August got stage 4 and surgery is not an option but she is spending hours on the toilet losing lots of mucus is this normal as both of us are really worried any information appreciated thanks
Hi,
I have an ileostomy and I do pass mucus, but not everyday and only a small amount. I just get the feeling that I need the toilet and as soon as it passes out, the feeling has gone. It is a pale putty coloured, and occasionally forms a dry ball. I have heard that some people have to wear protection from the discharge but I have to be honest, although I am not an expert, I haven't heard of anyone spending hours passing it. Does she have pain? I wonder if she has an infection. I think it would be worth maybe giving someone a ring and having a chat. Is your daughter on medication at the moment? Sorry that I cannot be more help.
Take care xxx
Thankyou for replying she passes it for a few days and then she's ok again till next time she's just on gabapentin at the moment not had chemo for about 6 weeks now as she had a really bad reaction from the covid jab once again thank you for reply xxx
Hello KormaNorma, I have had a stoma operation 10 days ago and they explained to me that some people may get some mucus from the bottom, some none and some may need to go to the loo several times a day. Don't worry it is normal and unfortunately for the last 3 days I have discovered that like your daughter, I am one of the last group! No fun ! Tell your daughter not to worry and I hope she gets better soon. I am seeing my oncologist tomorrow, I can't be operated on either, I will know my treatment plan tomorrow, chemo and radiotherapy. With my love and best wishes to you both, Bri
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