I'm the ultimate newby still waiting to have the CT scan next week before treatment is decided. This is something I've just thought about that someone might be able to answer
I am on epilepsy medicine - it's under control, and not the sort aggravated by bright lights etc & it's obviously on my records. BUT it needs to be in my brain at the right time or I have a seizure - has anyone had a treatment that has actually caused them to vomit??
I am finding this group really helpful - just reading about the treatments is helping me even tho I haven't even had the scan as yet - thank you
Hi SwimWalker and a warm welcome to the board from me. The chemo can cause feelings of nausea which you will be given tablets for but I think it may also have caused physical vomiting for some people. This is something that you will be able to discuss with the oncologist before you start any treatment if it is decided that you need chemotherapy. Surgery for Bowel cancer can have an after effect called ileus which results in vomiting - the bowel does not like being manhandled and can result in vomiting so it’s important to be very cautious when you start to eat.
Once you have the results of your scans then the MDT (multi disciplinary team) will meet and decide on your treatment plan. Depending on the position of your tumour you may go straight to surgery or have chemoradiotherapy beforehand. Either way you will have meetings and you can make sure that this is highlighted in your medical notes.
Glad the board is helping and feel free to post again or join in on any of the other posts
Take care
Karen x
Hi Karen - thanks for your reply - scan day is Thursday 15th, the team meeting day is Friday & they contact me on the Monday 19th. I've no idea where the surgery will be as I had no pain and no bleeding - tho there was obviously enough to pull me out on the regular screening. I will have surgery tho, as that was mentioned during the initial post colonoscopy blur. So I won't know what treatment lies ahead until Monday week - I'm not a very good waiter but an now coming to terms with the big C - as both parents had it, I am now as concerned for my daughter & grandsons...Tho having said that there have been huge advances in treatments over the last 20 years..
Hi SwimWalker.I was the same as you As hospital use generic drugs .They started to dissolve straight away,they were the pill,s that made me sick .So my husband dropped my own Epilepsy pills at theospital,After talking to my Surgeon I was to take my own Epilepsy pills..what a difference that made.Had my first appointment with my surgeon he said that made.( Still being sick ) .but my sick pill
help .Don't be afraid of your treatment after 6months and have not had a seizure since my treatment started 6months.
I was taken in A&E so no time to look at the internet which was a good thing Of you have any questions just let me know.
I'm so glad you replied to me.I'm on Keppra & Zonisimide. I've had problems with generic epilepsy drugs in the past - I know they are technically the same but there is enough variation in the Keppra for only the branded Keppra to be effective. I know I will need surgery sometime so will make sure I have enough medication put aside for a week or so. Really good to find someone in the same boat as me - thank you
Good luck with your journey..It's the unknown that's the hardest .I didn't get that option .As I have said don't be afraid .Take a list of and ask them They might be small but Each case is differen .This group are wonderful and they helped me Knowing that I was not alone Good luck.let me know how you get on.
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