Colostomy

Cranagh over 4 years ago

2 replies
118 subscribers
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My daughter is 13 has my fap bowel

gene gwtting her first bowel

investugation having general

anaesthtic and taking bowel

prep

day before she has had over kast six months a few in stats at hosp due to bowel

impact so she has been taking movicol but it never really works am hoping this next bowel

prep a bit stronger - we haven’t told her anything just that she has my faulty gene - do we tell her now that she may neeec bowel

removed before she 16 and a stomach on for few months as which I had done at 15 or do we get this first test done which will be annual and hope for the best that she can wait till next year and not have bowel

removed until surgeons say they need to do it also one parent allowed in with her - from

my previous messages I have anxiety about everything winder should my husband go in with her and I sit out side or am I better going in and hearing it first hand my girl would not mind which of us went in and think she might respond to my husband with no anxiety then me

court over 4 years ago

Hi ,

Oh that’s so hard for you . Our children are so precious. I can get really anxious in consultations and particularly at the beginning I deferred to my sister and my husband . They are like rocks in times of uncertainty and I spend half the time trying to remain upright . My mum describes me as stoic as I can do a fantastic cover up ! However I wanted my mum surrounded with calm people .I also found it difficult to process the information as I was working hard controlling the anxiety. I did quickly find my feet and have done the majority since then . I am a big believer in playing to your strengths in life . If your husband is less anxious let him take the lead in the first instance but you will be a big player in helping her adjust and process the information she has been given thereafter .

In terms of information I would get the information first then feel my way forward as appropriate. My sons friend had a colostomy as a young teenager . It was important for him to ask his own questions during his consultations . I think it gave him control and he adjusted well .

Take care ,

Court

Helpline Number 0808 808 0000

Cranagh over 4 years ago in reply to court

Thank you very much I think I can ring tomorew check what consultant is going to tell us in front of my daughter as at kast hosp admission I told nurse my girl

Knew nothing yet about gene and a doctor came in and said when do u get gene results he near died when another doctor elbowed him