Four years today.

Hi  all

 a few  chanhes  here 

 After  messing  up big time  at Queens  With the MRI  I have  dumped them  and   the GP has now refered me tto Addenbrooks  

 I saw  the  Neuro  sergury  deptartment yesterday a  Dr Raj  Jena top in his field

I  will have Steriotatic  Radio Therapy in the next week or  so  to destroy  the  two  tiny residual  left over  spots  of th orriginal ttumour  from the  brain

 To understand this you need to read  about the treatment  onlin( to technical  for  a one liner)

 I still have   a ckean boddy other than  that  ,no infected Lymphs  or organs.

 It appars that the cancer prefers to creep around in  my blood cells   so tne next is to ask the new Onologist  if we  can  kill  him

 Just  a quickie , I am taking Steroids to combat the  brain swelling. It has many side effects  however  I have been getting terrible mussle cramps as well. It would  appear that  as  I was tking them   and statins   they intereact

 Queens  should have stopped the  Statins  however  did not tell me (they cause the cramp rection)so  a heads up there for you all

 Would be nice if anyone has had the Steriotatc  Surgury  for  a heads up

 Anyway  onwards  and  upwards 

 Nextt years goals  starting with that 50th  wedding anniversary in February

 PMA

Hi Tony

Hope all goes well with your new treatment plan.

Take care

VickiLynne

P.P.S. And best wishes for the rest of the year and beyond from New Zealand! Looking forward to my surveillance colonoscopy early January. (Not really.) Cant help being nervous, but it should be ok. 

It's 13 days to my Colonoscopy and I'm starting to worry excessively. I don't mind the prep or the procedure really, but the anxiety about the report is irrational. Any strategies for dealing with this, or should I just put up with it? My wife is being affected too and she has enough to deal with, being stuck in a wheel chair during the day. 

Of course you are worried Wombles. I think the longer you are clear the worse it gets. We all feel the same. 

Suggest yiur usual coping strategies, dustraction, something enjoyable, talking to the helpline.

Sorry I’m not bring much help, but I feel for you.

Let us know hiw it goes.

Seaspirit x

Your CEA is looking great so you can draw comfort from that . Your wel and anxiety is totally normal but I am holding out for good news for you . 

Take care,

Court

Thanks all. Now it's only 5 days away and I've read the instructions and diet sheet about 73 times so far. Maybe I should put them away, the first thing isn't until Sunday and that's just two little tablets. It's the old 'what if' thing, which is silly but not something I can stop it seems. Surely after nearly 50 months with no worrying test results, all will be ok. Sorry, I'm just writing my thoughts and trying to put things into perspective. A bit introverted at the moment. And embarrassed about posting this, but here goes....

Hi Wombles, Don't ever be embarrassed about posting concerns on here, we all experience the "what ifs" I for one feel it's quite normal considering everything we have been through and it's our life we're talking about after all. I always try to keep in mind that I want the test results to give myself a definitive answer to what's going on inside me. Try to stay busy with life and you may not be quite so obsessed with thinking about the what ifs. I know easier said then done lol. I truly wish you excellent results. A whole lot of us are in the same boat, I'm raising the sails full and hoping for a tremendous wind!

Hi Wombles.

You and I are at the same stage. November 19th was 4 years since my surgery and I am worrying as well because it's colonoscopy time on 10th for me. 

I've been "clear" for 4 years as well and I consider myself very lucky but right now I'm very anxious about the up-coming procedure. Mine will be a virtual colonoscopy because of a previous very bad experience.  I still have to do all the bowel prep though and I will still need "blowing" up.  I will have to wait for the results as normal though which is always an anxious time.

I'm trying hard to be positive and I'm telling myself that it's normal to feel worried and I doubt that will ever alter but once next Wednesday is out of the way I know I'll feel a lot better because it's the procedure more then the results that are really worrying me.

Good luck to us both anyhow......and lets keep smiling because it confuses people.  We'll both be fine....just you see. xx

Hi Auntsally. Yes we are the same. Mine was an extended right hemicolectomy with 22 clear nodes and no spreading. So, we are quite 'lucky.' I've had one colonoscopy a year after surgery. Sometimes I tell myself that it's just a surveillance procedure and it's far better to have it done of course. It would be very silly to refuse it! And so on, but the niggling anxiety continues. I didn't mind the prep or procedure, it's just the waiting and 'what ifs!' I'll be told the result as soon as they finish. So, best of luck for Wednesday, let me know how you get on. X