Four years today.

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Made it to four years today since the, 'you have bowel cancer' announcement and surgery the same day. No waiting when there is a blockage, perforations and over four litres of waste built up with no way out. But no problems with any surveillance checks to date, just an underlying anxiety, especially now as the next colonoscopy is due! But I've been told that after 4 years, most of them are ok. I certainly hope so! Best wishes to all. Keep fighting... 

  • FormerMember
    FormerMember

    Hi Wombles

     You  are in the same position  as  I  was  in  February

     I was  T3 N0 M0 with my  bowel  cancer  four years  ago

     I had  all the tests in February  and was declared  cancer  froo

     In June  I had  a seizure 

     The  cancer  had entered my brain  and lung

     The lung  must have been  there for some time  as it has to develope   first   ( a secondary from the  bowel) 

    The brain will have started  around Christmas  and is aggressive  doubles in size  every 3 months

     Both have been removed  but brain  is  back however  only 8mm  at present

     I have  an MRI  Tuessday  and then probably  Radio Therapy

     The  reason i tell you is  I qquestioned  how this cancer managed to get out of my bowel seeing as the wall waas not breached nor  did I or do I have any infected lymphs

     I am told  that it is  a result of one rogue blood cell that got into my system during the original operation

    My advice to you  

     Insist on a full  CT on the whole of  your body Pelvis  Abdomen  Chest to be sure it is not hiding anywhere

     It cannot go direct to the brain unless it gets into your Lung

     I have just had this  done  all my tests including  CT to body  and bloods  tell nothing  anywhere else

     Nothing to panic you  just  a heads up  as I would never have known  that this was possible  to happen

  • FormerMember
    FormerMember

    Hi Wombles,

    That's great news, fingers crossed your colonoscopy will be fine.

    Best Wishes.xx

  • FormerMember
    FormerMember

    Hi Wombles.  Great news for you.  Gives hope to those of us who have just heard that dreaded phrase.  Keep well x 

  • Hi Wombles ,They say your odds of good clear results improve every year out. I believe you're in a good place, just know you have the thoughts and prayers of a lot of fellow travelers on this road we never expected to be on. In my opinion it's always always better to know by having a look in inside. Definitely keep us posted of your good results.

    Please give me the strength to change what I can, accept what I can't change and the wisdom to know the difference.

    Love and Respect Tony

  • Hi Tony m, You're truly an example to us all of what having a fighting spirit is all about. I was also pT3N0 and on the original scan a sub-centimeter nodule showed on the lower right lung. I'm having a full CT chest abdomen and pelvic on the 20th of this month. I'm like you in that living in ignorance is not my thing, if something is happening I want to know as soon as possible to aggressively fight it. I will try to accept my Death when it's Time, but until that time I will drive until I can't, I will walk until I can't and I will wake until I don't. Please keep posting you are an inspiration to a lot of us on here.

    Please give me the strength to change what I can, accept what I can't change and the wisdom to know the difference.

    Love and Respect Tony

  • Hi ,

    excellent news . Delighted to hear that .

    Court

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember

    Great news Wombles long may it continue.

    Best wishes


    EdP

  • FormerMember
    FormerMember

    Hello Wombles (from a very cold Devon)

    Congratulations on making the four years - here's to the next four.

    I know how you feel about the pending colonoscopy.  I had a scan last week and I'm a bit apprehensive about results at the moment.  Hopefully all will be fine, but if not -I'll fight on.

    Anyway, how's the weather doing with you?  It's suddenly dropped cold here and a real November day today.  I'm not looking forward to the cold wet winter days, but then spring follows which is always a beautiful time of year here.  We have a 'secret garden' which we leave wild and it won't be too long before the first sign of the snowdrops will be seen.

    Sending you best wishes and a hug.

    Take care,

    Lynne

  • Hello again Lynne. Yes, it's awful waiting for results! I really hope yours are good news. I asked if I could have my CEA test now instead of waiting until the end of January. They always agree, gets it over with before the country shuts down mid December, which is not too much of an exaggeration. I loved the Christmas in Winter times when I lived there. Even better as I was a primary school teacher and the children made it even more special. Keep warm. We have a not so secret garden too which we allow to do its own thing, with limitations. Best wishes and a hug back. Hope you get your scan results very soon! 

  • P.S. The CEA was 1.7 which is ok. Next one May, then November.