Changes To Taste During Chemo

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Hello everyone. I am new here.

My husband has been undergoing FOLFOX chemo treatment since June for bowel cancer with liver mets. He's had 9 fortnightly  rounds now, with 5 more scheduled. He has been coping with the side effects of fatigue and neuropathy really well. However, the last 2 rounds have had a massive impact on his ability to taste food and drinks. This has really brought his usually cheery mood right down (unsurprisingly). I am really struggling with this as he just doesn't feel like eating at all and I'm increasingly scared he's going to be malnourished. He has some Ensure high protein milkshakes, which he doesn't mind, but his lack of food variety is really upsetting me.

We have tried using alcohol free mouthwash, xylitol sweets and swilling the mouth between meals, but nothing seems to be improving the situation for him.

I'd be so grateful if anyone could share their experience of this with me and, of course anything which might help.

Thanks so much in advance. X

  • Hi I have had the same on Capox. Its really hard. I am now 4 weeks after my final chemo and slowly things are coming back. I found that trying all different things, especially things with a strong flavour appealed more. I was a chocaholic and went off chocolate. I enjoy fresh things like apples or tinned fruits. Water ironically was awful and tasted like slime. I ended up drinking fruit flavoured soda or tonic.

    Probably not helped at all but try to just take it a day at a time.

    Good luck

    P S Ice lollies are good!!!

  • Thank you so much for replying, Deedoc. That is really reassuring. It is incredibly difficult to watch him go through.

    Sadly, he has to have room temperature foods and drinks as cold or iced products adversely affect his neuropathy. No ice cream or Soleros for the time being. 

    Luckily water is fine, as is a cup of tea.