Hi everyone! Sending a big hug to each of you. ️
I’m Fati, a 41-year-old mum, and I’m so, so happy to have found this community.
I was diagnosed with bowel cancer, and the primary tumour has already been successfully removed. Unfortunately, the cancer has spread to my liver. I found out about the liver metastases just 10 days ago, so emotionally, I’m still on a rollercoaster.
I’ve already started chemotherapy, and liver surgery is hopefully still ahead of me.
I have a couple of questions, and I’d really appreciate hearing about your experiences:
Do you often find yourself thinking, “How is this all going to end?” or worrying about what the future holds?
How do you keep your spirits up and cope mentally with everything? Do any of you take medication for anxiety or depression, or get support from a psychiatrist or psychologist?
Thank you for being here and for sharing your experiences. Sending love to you all. ️
Hi Fati,
Yes, I find myself thinking that every day. You're not alone.
It's not always possible to keep my spirits up. Distraction helps.
To keep things manageable, I tend to keep to the skin cancer forum. But I'll definitely be following your blog.
Take good care of yourself.
Hi Fati ,
I had my primary tumour removed in 2024, it came back and spread to my peritoneum so I had a HIPEC in January, then it spread again to my liver. I had an ablation last Friday (all fine). I've had chemo twice, both six months each.
I also sometimes worry how it will end, but I remind myself that lots of people have been through this and come out the other side. I also remind myself that new discoveries are made every day. One day at a time!
I have had mental health support a few times in the last couple of years. I didn't take any medication, but I did speak to a counsellor on a few occasions.
To keep my spirits up I exercise a lot and I carry on working which is a good distraction. I also found that having chemo helped as you get chatting to other people in the chemo ward and hear their stories. Some people I spoke to have been on Pallative chemo for years and are living full happy lives.
Don't beat yourself up if you have bad days, we all do, but do try to take things one day at a time and make sure you get in some fun/nice things for yourself to focus on, rather than focusing only on the worries.
Best wishes
CerysM
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