Mucinous adenocarcinoma ( cancer of the appendix)

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I had an  appendectomy mid June ( appendix had burst and create an abscess) .

i was told on 3/7 it was cancerous and i would be referred to a specialist hospital for right helicolorectomy and HIPEC ( hot chemo wash in the abdomen ) I’ve been told it is grade 3 .

my local hospital thought the operation would be in August  and it had been caught early. 
To date I’ve had no treatment . 
After eventually getting a date for the op of the 28/9 , it was cancelled on Thursday . The latest scans have revealed it is currently inoperable and I have to have 3 months chemo to try to shrink some of the cancer. 
I have an appointment back at the local hospital on Friday (2/10) .yo discuss chemotherapy.

thers been lots of tears at each delay and feelings of frustration and being let down by the system which is ultimately going to cost my life .  I’m guessing it’s of you have felt like this ?

Does anyone have experience of this type of cancer .

from seeing the consultant on Friday , any ideas how long I will have to wait for the chemo to start .

ive read this type of cancer doesn’t always respond to chemo , so the ideal is to remove it by surgery .

  • Hi  and welcome to the Macmillan Community.

    I don’t have personal experience of this type of cancer, but I wanted to make you aware of another group in the community where you may want to join, which is specifically for this type of cancer originating in the appendix.

    Pseudomyxoma Perintonei

    Of course it’s absolutely fine for you to post in the bowel group, and I hope you’ll get some answers here, but the group I’ve linked to will widen your audience, and let more people see your post.

    Sarah xx

     


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