I would welcome advice please.

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I am in a quandary right now, & would very much welcome advice from others please.

Brief summation of past history:

2019 - Diagnosed with bowel cancer. Left Hemicolectomy; no adjuvant chemo.

2020 - 2 Lung Nodules (Bowel Mets) discovered. 6 mths. oral chemo, then RF Ablation procedure.

Bowel habits since - 1 week out of 4, Diarrhoea. (Something I've got used to, & never questioned.)

Jan. 2026 - Given all clear from Hospital.

Past two months - extreme urgent & continuous diarrhoea, Very low dull ache in left side. (after the diarrhoea) Basically, the low colon feels bruised - possibly from the diarrhoea?)

Presented to GP late May.

Fit Test - Normal

Bloods - Normal

CEA Markers - 'Normal for me.'

8th July - Consultant with a surgeon, who thought it unlikely to be a recurrence of bowel cancer, (Due to such a short period of time since given 'all clear.') & thought it more likely to be Colitis. However, he advised me to have a Colonoscopy to determine actual cause of symptoms. I mentioned my reluctance, as my last one was very painful. 

Colonoscopy is due 4th August.

Since seeing consultant, the diarrhoea has gradually been lessening in urgency & frequency.

For the past six days - my stools have been 'soft' but relatively normal - which of course is very pleasing.

& of course now I'm wondering not to go ahead with the Colonoscopy! Because I'm now 77 yrs.& skinny; & because of the pain of the last one! & let's face it, no one wants to go through an unnecessary procedure.

My dilemma is What if the symptoms return? & would I then be refused a Colonoscopy in the future? Will I feel like a failure?

Obviously I will have to decide very soon, so as to give someone else the chance of having the procedure.

A part of me feels like I have frightened my bowel into behaving itself! Mind over matter perhaps?! 

Thanks everyone for reading this. 

  • Hi  I personally think that you should apply Sod’s Law ie. if you don’t have the colonoscopy then a pound to a penny the symptoms will reappear! I know they’re not nice but it would give you clarity either way and peace of mind? 

    Just my two pennorth but take care and please keep us updated

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hi Marianne26

    My first colonoscopy was extremely painful as well, and I vowed never to have another. However, when I was coming to the end of the 5 year surveillance, and by then under a different hospital and new consultant, I was persuaded to have another colonoscopy as a final belt and braces. On the day and dreading it I explained to to the colonoscopist that I'd had a horrible time first time round and she was so lovely. I got a bit extra sedation - not knocked out but enough to feel relaxed and she also used a paediatric scope. What a difference 2nd time round just because someone listened and acted accordingly.

    I can't advise you to have the colonoscopy but maybe you could have a chat with the medical staff in advance to see if they were amenable to making some adjustments to help the procedure progress more smoothly and with less pain? At least you would get a definite answer one way or the other (and hopefully heave a huge sigh of relief).

    I hope that you can come to the decision that's best for you and wish you well.

    Take care. Sheila x