First session on Folfiri

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Hello all,

Had my first chemo last Tuesday. The pump part was removed on Thursday no issues. Noticed my breathing getting harder and harder. Got really panicked on Sunday by it, and called in. Ambulance trip up to A&E. Xrayed and blood tested. Blood test showed elevated D-dimer. Doc gave me a blood thinner jab and ordered CT scan to check for pulminary edema. Lung blood clots confirmed on Monday after scan. Now on blood thinners for the duration.

My face feels like it's been peeled and I can hardly eat as my mouth is just incredibly tender and stinging. Milky drinks help. Using skin creams (nivea) and the like and Aloclair mouth wash. The skin creams do work well and give quite good relief. Been using corsadil mouthwash for ulcers and stuff but didnt really help. Too stingy. Got the Aloclair stuff today and while still stingy, seems to help at the moment. Will be contacting oncology tomorrow to talk about this.

Has anyone else had trouble with this regime this early? I kind of expected it to accumulate and ramp up over the course, but not like this. I am worried about having another dose which is due Tuesday coming. Hence the call I will make tomorrow.

I know I have been like a bear with a burnt backside and my wife is being incredibly supportive, but its getting her down as well. She doesn't want me hiding anything or being stoic or anything, but, prrrffft.!!

Thanks for listening.

C.