Lonsurf and Avastin regimes

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Hi everybody. I’m new here although not new to this cancer! I was diagnosed with Bowel Cancer just over 4 years ago. I have had numerous treatments and now the latest is Lonsurf and Avastin. I have started with the Lonsurf but didn’t get the infusion due to high blood pressure. I also ended up, due to delays at Pharmacy, starting the Lonsurf a day later that my schedule. It means I am a day out of synch for my next round. Has anybody had a similar experience and saw it sorted or didn’t it matter. I have also been confused over my blood checks. Do people have bloods checked before each infusion or every 28 days? Thank you for any advice/help given.

Kareno62 17 days ago

Hi Scotstoun I’ve not had that combination of chemo but I had my bloods taken by the chemo nurses and checked before giving me my oxaliplatin infusion every fortnight

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Scotstoun 17 days ago in reply to Kareno62

Hi Karen, thanks for the reply. I also had the oxaliplatin regime and had blood tests every fortnight or before each infusion. I have to say that the oxa regime was brutal!! Really took its tole on me. This latest regime, Lonsurf and Avastin is hopefully not as bad BUT I was told a couple of weeks ago that I only needed to get blood check every month and I don’t think it’s right. I have an infusion every 2 weeks and feel sure I should have blood checks before each one. I hopefully will find out today. Thanks again.

Loomeytunes2001 16 days ago

Hi Scotstoun,

I can confirm my husband is on that treatment, and the blood tests are carried out 48 hours before treatment every other week.

Take care

Annabelle_ 16 days ago

my mum is on this regime after having others too ( although not sure yet if this one is doing what it should) but she has had problems getting the tablets on time and was once a week late in starting! She has her bloods the Monday of the week she is having the infusion ( on the Thursday)

she has also been delayed due to low wbcs

Cecile 16 days ago

I was on Lonsurf/Avastin for over a year and had bloods every 2 weeks, 48hrs before each treatment. I don’t think it matters that you started Lonsurf a day later, you’ll get back in sync at the next cycle.

Scotstoun 15 days ago in reply to Cecile

Thank all! I have it sorted now! I was in the hospital yesterday and they went through it all with me. Basically I don’t need bloods taken every 2 but once every 28 days. I had my first infusion today and it was pretty straightforward. I have no treatment now until 11th March! So it’s as follows:

infusion of Avastin and

5 days lonsurf tabs-2 days off

5 days tabs- 2 days off.

2weeks off and then start the same again.

Thank you all for your help. I’m sure I’ll be back with questions at a later date!

Loomeytunes2001 14 days ago in reply to Scotstoun

Does that mean you are only having an infusion of Avastin once every 4 weeks?

My husbands 4 weekly regime is

infusion of Avastin

followed by 5 days of Lonsurf, two days off

5 more days off Lonsurf , two days off

then Avastin infusion only