Lonsurf and Avastin regimes

Hi Scotstoun I’ve not had that combination of chemo but I had my bloods taken by the chemo nurses and checked before giving me my oxaliplatin infusion every fortnight

Hi Karen, thanks for the reply. I also had the oxaliplatin regime and had blood tests every fortnight or before each infusion. I have to say that the oxa regime was brutal!! Really took its tole on me. This latest regime, Lonsurf and Avastin is hopefully not as bad BUT I was told a couple of weeks ago that I only needed to get blood check every month and I don’t think it’s right. I have an infusion every 2 weeks and feel sure I should have blood checks before each one. I hopefully will find out today. Thanks again. 

Hi Scotstoun, 

I can confirm my husband is on that treatment, and the blood tests are carried out 48 hours before treatment every other week.

Take care

Hi

my mum is on this regime after having others too ( although not sure yet if this one is doing what it should) but she has had problems getting the tablets on time and was once a week late in starting! She has her bloods the Monday of the week she is having the infusion ( on the Thursday)

she has also been delayed due to low wbcs

I was on Lonsurf/Avastin for over a year and had bloods every 2 weeks, 48hrs before each treatment. I don’t think it matters that you started Lonsurf a day later, you’ll get back in sync at the next cycle.

Thank all! I have it sorted now! I was in the hospital yesterday and they went through it all with me. Basically I don’t need bloods taken every 2 but once every 28 days. I had my first infusion today and it was pretty straightforward. I have no treatment now until 11th March! So it’s as follows:

infusion of Avastin and

5 days lonsurf tabs-2 days off

5 days tabs- 2 days off.

2weeks off and then start the same again. 

Thank you all for your help. I’m sure I’ll be back with questions at a later date!

Does that mean you are only having an infusion of Avastin once every 4 weeks?

My husbands 4 weekly regime is

infusion of Avastin

followed by 5 days of Lonsurf, two days off

5 more days off Lonsurf , two days off

then Avastin infusion only

Hello, I hope you're doing well now? Did Lonsurf and Avastin manage to maintain your CEA and keep the cancer in check? Since you're off that treatment, what other treatment have the doctors suggested? Thanks in advance!