Chemo again.

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in November 2024, just 14 months ago. I had the right side of my colon removed due to colon cancer, followed by 6 months of chemo, on Capectibine tablets, at a different hospital. At the finish, in July 2025, as part of my 5 year plan, I had a CT scan which showed the cancer was gone. In October of last year, another routine CT scan showed a possible new cancer, this time in my urethra from my right kidney to my bladder. The hospital that carried out my operation Carried out a Ciscoscopy and inserted a stent by the urethra. This has left me with an active bladder needing me to visit the toilet every couple of hours - especially overnight so sleep is at a premium. I have mentioned this to Urology, and to the hospital that deals with my chemo, but neither seem to be bothered really. I am. In November of 2025, again as part of my 5 year plan, I had a colonoscopy at the hospital that carried out my operation which came back clear of cancer.

The hospital that deals with my chemo has confirmed that tests show I have some cancer in the area of my colon again, and not in my bladder. I’m to have a PET scan later this week, followed by a PICC line being fitted the following week followed by 6 months of chemo using FOLFOX and BEVACIZUMAB starting in 12 days time. I am absolutely terrified. My chemo hospital seemed to believe that an operation was required first before chemo started, but at my consultation at the Urology hospital seemed surprised at that suggestion as their view is no operation is required.

How can a CT scan, and a colonoscopy give me the all clear, and a month later I’m diagnosed with cancer again!  How can one hospital say no operation is required, and the other think there should be! Where do I place my faith! Has anybody else had similar problems? I’m sorry if this a seems jumbled and confused but that just reflects how I feel. I’m eternally grateful for the treatment I’ve had, but extremely worried about what’s to come.

  • Hi  

    I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    I'm sorry to read what you've been going through and I can totally understand why you'd be confused. I hope someone in this group can help you by sharing their experiences.

    While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • Hi  

    I think all your questions sound valid to me and no way r undermines  your genuine gratitude for previous treatments and how they were carried out .  
    I think I would have questions too .

    You are entitled to ask more questions to feel satisfied that it’s the correct pathway for you or to have a second opinion .

    I have read before that some people although very few have a spike in the tumour markers but the CT scan shows nothing and they can only identify it by the Pet scan . Are your CEA tumour markers raised ? 
    I do think you could email your consultant or oncologist and say the different conversations and information has left you confused . Could they explain the reason for chemo first again .

    I wish you every success .

    Court 

    Helpline Number 0808 808 0000

  • Thanks for your reply court. Throughout my chemo between February and July last year my tumour markers went up from 2 to 5. After my chemo I had a scan which showed no cancer, which was great, but in October a routine blood test showed my tumour markers had risen to 10, and another scan showed suspicious activity around my right Urethra to the bladder. In November I had routine follow up colonoscopy as part of my 5 year plan and that was clear. In  December I had a Cysoscopy at a different hospitals urology department and they inserted a stent beside my right Urethra. Results of there test confirmed the issue was to do with my previous bowel cancer operation in November 2024. I’m having a pet scan today and am scheduled to see my consultant on Tuesday after having a PICC line fitted, so I will ask questions then.

  • That’s a good timing to get your questions answered.

    I wish you every success . X 

    Helpline Number 0808 808 0000

  • A dreadful ordeal for you   ! To have gone through all that,and get an all clear only to have this thrown in your face is a cruel blow... However you sound like a very determined and resourceful soul and you're already gone some way to getting the new plan sorted, but agree that you need to nag the GP/consultant now (politely) and find out exactly what the plan will be. Wishing you every bit of luck Wink