Dad stage 4

Hi, my dad is in a similar situation, he has lost weight, low energy levels and liver mets. He is planning on having chemo soon. I'm in no way medically trained but I'm not sure if Immunotherapy could be an option for your dad or if he may be suitable for it? You could ask. Maybe others on here can offer more advice.

My Dad is stage 4. He had a tumour in his rectum & multiple in his liver. He is also 73x 

We were so worried about him tolerating chemo hiwever hes had about 16 rounds and doing well & has no active cancer left in his body. 

you do need to stay as well as you can though. I would maybe talk to his GP about getting him some weight suppliments (fortisip drinks ) to help him with the weight loss. 

They can only guess with prognosis but they dont know for sure as people respond to treatment differently. 

have they said how long you have to wait to see oncology? 
sending love

Thank you. He has oncologist appointment 2nd February, feels like a long wait.

No problem at all. 
Weve been on this journey 3 years now so know pretty much the ins and outs of everything but what i will say is at the beginning , i thought that everything would be done instantly and i had mini melt downs when we had to wait a week here and a week there, what i did learn is that there is always weeks inbetween things. 
Colorectal cancer is very slow growing and your dad will have had this cancer probably for around 5-10 years and never known so in the grand scheme of things a week here and there doesnt really do any harm although it does mentally to us.  

At this appointment they will tell him the plan, tell him what chemo they will use, take his bloods and some swabs and tell him possible side effects.they will send him home with booklets to read then He will then have to go back and sign consent forms. 
he should start chemo around 1-2 weeks after hes signed the forms. 
hope his appointment goes well. Any questions feel free to ask me x

You’ve described a lot of what I’ve been feeling. Just a couple of questions, is it IV chemo and does your dad have a port fitted? How many appointments can he expect to have over next three months. He doesn’t drive so I will likely have to transport him around. 

To start with he went on a chemo called Capox which was an IV infusion at the unit and chemo tablets to take home. This was done through a cannula in his arm at the unit. This was every three weeks. 
After a while he ended up having a picc line in which is a temporary line in his arm. If they offer him a picc line though , if i was him id ask for a port as you have to go get picc lines redressed and flushed every week. 

After every cycle you have to go get a blood test and an oncology welfare appointment so a couple of appointments every 3 weeks x

Update - my dad had his appointment with oncologist. He’s T3N0M1 and are starting him on a fortnightly cycle of irinotecan once he has a port fitted. They’ve said port should be done within next 2 weeks. After 6 cycles, they’ll scan him to see if the tumours have shrunk. 

Ive heard of irinotecan , its one of the common chemos they use for this type of cancer. My dad hasnt had this one yet. 
I really hope it works well for him and shrinks all the cancer right down!

Just posting an update on my dad. He managed 2 cycles of chemo and unfortunately his white blood cell count plummeted after the second cycle. He contracted an infection which he couldn’t recover from. He passed away yesterday. They obviously tell you when you consent to the chemo that the treatment could kill you, not the cancer but it’s still a shock this has happened so quickly. 

I’m so sorry for your loss. Prays are with you