Hello
I was told chemo would start within 12 weeks post surgery (ULARS with Ileostomy completed on 4th Nov) for the best outcome. I've had an appointment with my oncologist to discuss everything and who told me chemo (Capox) would start after Christmas. But, I received a letter now saying my next appointment for a chat with the chemo nurses will be on 26th of Jan which is a day past the 12 weeks and with no date for chemo to actually start. I'm T3N2aM0V1. I'm fit and healthy (!) and have fully recovered from surgery). Really worried about the wait.
Hi RosieL25 Yes I think they ideally like to start chemo within 12 weeks but I know it’s the busiest time of the year for hospitals. Could you ring your colorectal support nurse for a bit of reassurance? Remember too that this is the belt and braces mop up chemo - the actual tumour and affected lymph nodes have been removed?
My treatment was in 2016 and I had surgery on 28/11 but then had a few set backs (see my profile!) so didn’t start chemo until 3/4. My chemo was due to affected lymph nodes and the oncologist said she wouldn’t be unduly worried if I wasn’t up to chemo but I did it eventually.
Glad to hear you’ve recovered well from the surgery
Take care
Karen x
Thanks Karen. I needed that. I think I'm too focused on the 12 weeks thing and because they found cancer in my nodes and blood vessels, my brain is making a mountain out of a molehill. I couldn't get advice from 3 numbers I tried so am still at square one. Gonna just try and get through another month and wait to see what they say on the 26th.
Have a great Christmas x
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