I am post surgery (early August) and at my recent Oncologist meeting I was offered "clean up" Chemotherapy I have carefully reviewed all the paperwork provided and although we agreed on a treatment plan using CAPOX In three months, I read in the NHS appendix for Oxaliplatin, it mentions a "marginal benefit" when taking the CAPOX route. I was offered CAPOX in three months or Capecitabine for 6 months.
I have previously had chemotherapy for a non-organ cancer and it left with mild neuropathy, after reading about the Oxaliplatin it worrys me about lasting damage. Any experience or thoughts on this?
Many thanks
Hi Little Billie
I am sorry that you have not yet had a response to your post but sometimes it can just take a little longer.
I am sorry to hear that you have had surgery for bowel cancer and hope that you have recovered well from it. My own cancer was endometrial and I also had surgery. After the surgery it was recommended that I had adjuvant chemotherapy and remember it being a scary time.
My chemo left me with peripheral neuropathy and I can understand your worries about further nerve damage after your previous chemo.
It is a hard decision to make. My own chemo was reduced in dosage following neuropathy symptoms from the first cycle.
While you are waiting for someone to reply to your post, I wonder if it would be worth giving the Macmillan Support Line a call and talking to one of the nurses about your concerns with the oxaliplatin and to talk about the different chemo regimes you have been offered. They are there from 8am-8pm daily.
I wish you well for your treatment whichever one you decide to do.
Jane
