Anxious wait part 2

Hi ffm and good to hear that things are starting to move. A lot of people on here have had to have an MRI scan due to spots in the liver. These are quite often harmless cysts called haemangiomas which are very common and most people go through life with them none the wiser unless they have this sort of scan. The lung spot may need a blast of chemo before surgery but the experts will decide on the best course of action.

I know it feels like it’s not straightforward but it’s not uncommon and there are lots of people on here who’ve been in a similar position and been successfully treated. Take each stage of treatment one step at a time and then focus on the next bit. The next few months will be tough but it’s doable and we’re here to help and support you through this

Take care

Karen x

Excellent advice from Karen there. The whole business of being diagnosed with cancer is from the start fraught with uncertainty, doubt, change and anxiety because each one of us is different with a differing diagnosis and each one of us requires a carefully tailored ,specific plan of treatment-this requires time and skill, and as we know the volume of cases discussed at such MDT meetings means the skilled medics running the sessions are under constant pressure; but taking their time just a little means they get it right-and you would very much want them to get it right  It is incumbent upon us, the patients, to be as brave and as patient as we can be.

Thanks so much for your excellent advice. I cannot speak highly enough of the speed of response by the medics and their real professionalism

Hi ffm , I also came on this forum a few months ago very scared as I also had a spot on my liver which needed an MRi and it turned out to be harmless. Also something on my kidney which turned out to be nothing to worry about. I was also convinced it was malignant but lovely people on this forum reassured me. So I just wanted to say although it’s very hard to wait and you sometimes fear the worst, the spots could be a number of other things. I was also reassured by the medical team that there are a lot of options even if it does turn out to be something a bit troublesome. Thinking of you and hoping for positive outcomes for the scans xx

The waiting is horrendous isn’t it. And I’m not even waiting on results for me, it’s my sister. It’s interesting that your named nurse gave you some results over the phone as that was one of the questions I had regarding my sister and something her nurse told her regarding a scan. 
hopefully not too much longer for you to get some clarity and a treatment plan going. From what Iv read in this forum, once you get a plan, some of the anxiety decreases and you take it day by day after that. 
what’s also reassuring is that there are many people at different stages of treatment , different grades etc and they are still here, still being offered treatment and there are so many tricks in the bag to fight it. Some things I didn’t even know existed until I joined this forum. 

I'm sorry this is happening to you. The news is not good but it isn't terrible either. 

Trust in your medical team. They need to chase down these details to make the best plan for you. Cancer treatment isn't "one size fits all". It needs to be tailored to you. 

The anxiety does get better after you have a plan. Then you can focus on the plan instead of imagining the worst. 

Ki21, sorry to grab the thread but can you tell me about the kidney lesion?  I have a 7mm lesion on my kidney they say is malignant looking from the CT. Is there a further investigation they use to confirm /deny this? Im being told it’s too small for further investigation. How did they rule out malignancy with yours? 
Many thanks x

Hi Lee_L to be honest I was so relieved when they just told me it was nothing to worry about that I put it out of my mind. there was mention of the word ‘lobular’ something or other and they said maybe it’s resting to previous trauma. But I do need to ask them again exactly what it is and whether it is something that could change. I had MRI after the CT scan but that was more to rule out the lesion on the liver. Initially after the CT they also did an ultrasound of the kidney which is when one consultant said it was a cyst with fluid. Sorry not very helpful for you as mine is a bit vague - but it has reminded me to ask again as I feel it wasn’t investigated very thoroughly. I’m sorry you don’t have positive news on the kidney but I am sure there must be something they can do to know for certain? Wishing you all the best xx

Thanks Ki21, I have another kidney scan booked in May and will ask for an ultrasound.  I’ve also managed to secure a consultation appointment which seems as rare as hen’s teeth currently.  I just need to know.  
My cancer road never seems to run straight. 

Good luck getting all the info that you need too x

Hi and and good morning. 

Quick update on anxious wait.

Phoned 5pm yesterday and MRI arranged for Saturday. 

I certainly can't complain about speed and efficiency my my chosen hospital.