CAPOX back and stomach pain

Hi all. I’m imagining that you are both finished with your chemo and now off line!! If so I hope it was a success!

I am having exactly the same pain and issue with spasms. I had my first treatment 3 days ago and had to call an ambulance on the first night. Very scary. Had an ecg and was told it looked okay. Had another episode but not as bad the next evening. It seems to be slight triggered by lying on my side then moving to my back.

can I ask if it got any better for you over time? 

Yes, I joined this group for this exact reason. The exact pain in my torso with shooting sharp pains. I had my first ever IV on thur. It's very scary and sore. We had a similar journey stage 3 with resection. I am going to talk with my consultant tomorrow to hopefully reduce my tablet strength. The helpline today told me to hold off on my tabs for 24 hours to see does it ease. 

Have you spoke with your team? 

It went (relatively) well and am thankfully a few months on from treatment now. I’m sorry you’re going through this. I found the spasms to be worst on the first round, but only had them for two nights; they were better second time around and didn’t feature much, if at all, after that. Good luck with everything you’re going through - look after yourself.

Evening,

yes, it did go away.  I think it was the Oxaliplatin infusion.  I’m now trying to remember back to summer 2024 and, to be honest, I’m not sure how many days it lasted. What I do remember was that I dreaded the first night after the Oxaliplatin infusion as it returned.  

I think it will fade as you move through the cycle. I’m assuming you now have two weeks of Capecitabine pills, then a week off?  

Paul

Hi all. So nice to hear from people who have been through a similar thing. I’m glad to hear that some of you are through it. 
The spasms have got less severe than on the first night luckily. Spoke with my team and they told me to hold off taking the capecitabine for 24 hours after the infusion. Took my first day of pills yesterday and seems to be okay so far. 14 days of pills to go. 
Clare am going to speak to my chemo doctor hopefully this week to see if as some have helpfully suggested here making the infusion 3 hours long rather than 2 or reducing the strength slightly might make a difference to my next infusion. If possible want to sort the spasms out. Happy to share what they say. 
Thank you all again for responding. 

Yes please do. I'm going to request the same. 

Yes, two weeks of tablet now. 3 nights of torso spasms, so I was told to stop the tabs until I get a review 

I’d be really interested to hear what they say about the spasms. Hopefully I’ll never have chemo again, but I’d be keen to know what caused such pain on my first couple of nights. 

keep us updated on how it goes over the next couple of days. I reckon it will fade in a day or so.