CAPOX JOURNEY

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Morning all,

Today, 3 weeks after 5 weeks of radiotherapy with chemo tablets (Capecitabine) hubby is starting his IV CAPOX regime. Oxaliplatin today followed by 2 weeks of capecitabine, 6 days off then repeat another 3 times.

He is currently feeling great! The best he has for the last 4 months so going in knowing it’s not going to be the best is a little worrying.
BUT this is what they recommend to give him the best chance and we are holding onto that thought and planning what we might do in August/September.

I’ll post all the good & bad on here as 1. Therapy for me ( it does help to write about it) & 2. Info for anyone who is going through the same thing.

please let me know what you think and any hints & tips for either of us to get through the next 3 months.

Good luck in all your personal journeys. Taking it one day a a time.

B x

Ki21 5 months ago in reply to Nevermind

Congrats that is great news!!! Hope it goes well. I’ll also be in doing my last chemo ( if bloods are ok) so I’ll be thinking of you while I eat my nice RUH sandwich . Best of luck for tomorrow xx

Nevermind 5 months ago in reply to Ki21

Shame I couldn't meet you? Do you live in Bath ? ️ i had my Op , in a ward for a few days now, all went well

Ki21 5 months ago in reply to Nevermind

Oh so glad it’s all done! How are you feeling? Last infusion didn’t go too well - half way through I felt really cold then they checked temp and it was high. So stopped the infusion and checked bloods which were ok..then they took various other samples and then decided to carry on with the infusion so didn’t get home until 7! I should have popped onto the ward to say hello!! Hope you manage to escape soon

Nevermind 5 months ago in reply to Ki21

Awww that's rough Ki21 that chemo ...you know it can be hard work ! Glad you got in done and got home safe x

Ki21 5 months ago in reply to Nevermind

So after going home and feeling fine they called me up to say some bacterial infection found but not sure from where. So I’m back in for IV antibiotics - am feeling really anxious. How you getting on x

Nevermind 5 months ago in reply to Ki21

Oh poo, Ki21 !!! Sorry to hear that. Hopefully it'll clear up quickly.

I'm doing well, I've eaten and it stayed down and best of all, a number 2 has emerged from where God intended, not a stoma! That's a huge breakthrough , first one from ' there' since Dec17th 2024

Ki21 5 months ago in reply to Nevermind

That’s such good news! When can you go home? I’m just so anxious about all of this - but I think it can be quite common to have an infection and need the IV? X

Nevermind 5 months ago in reply to Ki21

Yes, infection and IV isn't uncommon. You mustn't worry All we can say about the cancer journey is to be certain of how uncertain things will be.

If things behave , Thursday i hope

Arial88 5 months ago in reply to Nevermind

Well done Nevermind !!! So pleased for you! Take care x

Bella12 4 months ago

Hi there everyone

Over the past 14 months these forums have been a source of information for both myself and my husband who was diagnosed with bowel cancer in Sept 24 - Chemoradiotherapy followed by CAPOX then APR Surgery in September (Barbie/Ken Butt and permanent stoma)

MRI & CT scans early November 25

Today we went for an appointment with his surgeon to hopefully hear that all was well and he would just be on regular checks. However we were told that although all the cancer was clear in his pelvic area it had spread to both his lungs and his liver. This meant he was stage 4 and the prognosis was not good (data says 6-12months)

He is going to be referred back to oncology to see what they can offer. So now waiting for that. So not the day we expected.

How the hell do you cope with news like this? We are both in shock and very tearful. We have 4 kids between us and 4 grandchildren plus 1 on the way - how do we tell them

?? do we tell them ? Any advice or encouragement requested xxxx thank you